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Open Imaging Index
LicenseRef-PPP-Data-Sharing ยท custom agreement

Personalized Parkinson Project data sharing procedure and Qualified Researcher Agreement

Data are released for Parkinson's disease or PSP research projects approved by Radboudumc or its review committee, after signing a Qualified Researcher Agreement and paying a release fee. Data stay with the approved project, derived data go back to the repository, and manuscripts are submitted for review 45 days before submission.

Original license text Edit Purpose: Approved project only Version read: PPP Data Sharing website pages (Requesting data, Costs, Using data), read 2026-10-12; the QRA text is not public Checked 2026-10-12
GA4GH DUO: PSRTN

Our reading of the license, not legal advice. Before you use the data, read the original license and confirm that your use is allowed. We take no responsibility for how you use a dataset. Full disclaimer

In your favor With conditions Restricts you Not stated in the text

What you can do

  • Conditional
  • Not stated
  • Not stated
  • Conditional
  • Conditional

What you can share

  • No
  • Not stated
  • Not stated

What you must do

  • Yes
  • Share alike No
  • Yes
  • Not stated
  • Yes
  • Release code No
  • Yes
  • Not stated

Limits

  • Yes
  • No

Datasets under this license

  • Personalized Parkinson Project (PPP)

    Brain MRI (structural, diffusion and task fMRI), biospecimens, smartwatch sensor data and deep clinical phenotyping of people with early Parkinson's disease, followed for two years at one Dutch centre to study progression. Shared with approved researchers.