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Anything you share that is built on the data must use the same license.","purpose":"any","rules":{"commercial_use":{"value":"yes","quote":"Share — copy and redistribute the material in any medium or format for any purpose, even commercially."},"model_training":{"value":"yes","note":"Creative Commons' AI training guidance (2025) treats training as allowed under the license conditions."},"derivatives":{"value":"yes","quote":"Adapt — remix, transform, and build upon the material for any purpose, even commercially."},"publication":{"value":"yes","note":"The license does not restrict publishing results."},"redistribute_original":{"value":"yes","quote":"Share — copy and redistribute the material in any medium or format for any purpose, even commercially."},"redistribute_derivatives":{"value":"conditional","note":"Allowed under the same license.","quote":"Adapt — remix, transform, and build upon the material for any purpose, even commercially."},"share_model_weights":{"value":"conditional","note":"Allowed under the same license. 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Anything you share that is built on the data must use the same license.","purpose":"any","rules":{"commercial_use":{"value":"yes","quote":"Share — copy and redistribute the material in any medium or format for any purpose, even commercially."},"model_training":{"value":"yes","note":"Creative Commons' AI training guidance (2025) treats training as allowed under the license conditions."},"derivatives":{"value":"yes","quote":"Adapt — remix, transform, and build upon the material for any purpose, even commercially."},"publication":{"value":"yes","note":"The license does not restrict publishing results."},"redistribute_original":{"value":"yes","quote":"Share — copy and redistribute the material in any medium or format for any purpose, even commercially."},"redistribute_derivatives":{"value":"conditional","note":"Allowed under the same license.","quote":"Adapt — remix, transform, and build upon the material for any purpose, even commercially."},"share_model_weights":{"value":"conditional","note":"Allowed under the same license. 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It is governed by the law of Victoria, Australia."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-AIMS-TBI-DUA","name":"AIMS-TBI Data Use Agreement (University of Utah)","short_name":"AIMS-TBI DUA","url":"https://docs.google.com/forms/d/e/1FAIpQLSfFT4l0vGXVOFz6Tyz4t_whNXHSRGv1J6y2iJUcZ0HLVsYo2Q/viewform","version":"Agreement text in the \"AIMS-TBI data access 2026\" Google Form, read 2026-10-08 (the 2025 form has the same text)","summary":"Signed through the challenge data access form with the University of Utah. Use is limited to research under the University of Utah IRB 138479 or other purposes agreed in writing; the data may not be passed on, publications must credit the University of Utah, and the data must be returned or destroyed when the permitted use ends.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"The agreement does not mention commercial use, but limits use to research under IRB 138479 or purposes agreed in writing with the University of Utah.","quote":"User, and any Authorized Party on User's behalf, may use the Data only for the following purposes and for no other purpose: research activities pertaining to IRB 138479 and any other research purposes as mutually agreed upon in writing."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. The data are released for a segmentation challenge, but the permitted use is research under IRB 138479 or purposes agreed in writing."},"derivatives":{"value":"unspecified"},"publication":{"value":"conditional","note":"Allowed with acknowledgement of the University of Utah.","quote":"In the event of any publication or presentation of User’s work using the Data supplied by University of Utah, User agrees to acknowledge University of Utah and/or give credit to University of Utah scientists, as scientifically appropriate, based on any contribution they may have made to the work."},"redistribute_original":{"value":"no","quote":"Not to use or further disclose the Data or any information contained therein other than as permitted by this Agreement or required by applicable law."},"redistribute_derivatives":{"value":"unspecified","note":"The agreement does not say whether derived data such as new labels or trained models count as information contained in the Data.","quote":"Not to use or further disclose the Data or any information contained therein other than as permitted by this Agreement or required by applicable law."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"In the event of any publication or presentation of User’s work using the Data supplied by University of Utah, User agrees to acknowledge University of Utah and/or give credit to University of Utah scientists, as scientifically appropriate, based on any contribution they may have made to the work."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"Signed by typing your name in the challenge data access form.","quote":"WHEREFORE, the parties, through their authorized representatives, hereby accept and agree to the terms and conditions of this Agreement."},"ethics_approval":{"value":"no","note":"The agreement refers to the organisers' IRB 138479 but does not ask the user for an approval of their own."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"yes","quote":"Promptly following the end of the permitted use (as defined in Section 3 above), to return all copies of the Data to University of Utah or destroy any copies of them and certify to the destruction; or, if User represents and University of Utah agrees that neither return nor destruction is feasible, to continue to extend the protections of this Agreement to the Data."},"no_reidentification":{"value":"no"},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-AMYPAD-PNHS-DUA","name":"AMYPAD PNHS Data Use Agreement","short_name":"AMYPAD PNHS DUA","url":"https://doi.org/10.5281/zenodo.21032957","version":"DUA 202606, Zenodo record published 29 June 2026","summary":"Accepted with a data access request that the AMYPAD Data Sharing and Publication Committee reviews. Users act as data processors, must not re-identify participants or pass the data on, may share derived data only at group level, and must credit AMYPAD as set out in the PNHS Publication Policy.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The agreement does not mention commercial use. The data page names companies among eligible requesters, and the access request document limits use to scientific research and education.","quote":"AMYPAD offers a way of accessing the PNHS data to academic researchers, institutions and companies from all over the world.","source":"https://amypad.eu/data/"},"model_training":{"value":"unspecified"},"derivatives":{"value":"yes","quote":"When sharing secondary or derivative data (e.g., group statistics or derived images), I will only do so if they are on a group level, and cannot be deduced information from individual participants."},"publication":{"value":"yes","quote":"We encourage the publication of any research arising from the AMYPAD Prognostic and Natural History Study (PNHS).","source":"https://doi.org/10.5281/zenodo.21032996"},"redistribute_original":{"value":"no","note":"This includes people at the user's own institution.","quote":"I will not redistribute these data or share access to these data with others, unless they have independently applied and been granted access to these data, i.e., signed this Data Use Agreement."},"redistribute_derivatives":{"value":"conditional","note":"Only group-level derived data from which nothing about individual participants can be deduced. Per-subject labels or segmentations do not meet this.","quote":"When sharing secondary or derivative data (e.g., group statistics or derived images), I will only do so if they are on a group level, and cannot be deduced information from individual participants."},"share_model_weights":{"value":"unspecified","note":"Models are not mentioned. The group-level rule for derived data may apply to weights that could reveal individual data."},"attribution":{"value":"yes","note":"The Publication Policy requires the EudraCT number 2018-002277-22, the dataset version and DOI, the IMI 2 grant 115952 statement and the byline \"On behalf of the AMYPAD Consortium*\".","quote":"I will reference the specific source of the accessed data when publicly presenting any results or algorithms that benefited from their use"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"By accepting this agreement, I become a data processor (as defined under the GDPR law) of the data that I have access to, and I am responsible for accessing these data under the following terms"},"ethics_approval":{"value":"conditional","note":"The agreement does not itself ask for ethics approval, only compliance with institutional and national rules.","quote":"I will comply with all relevant rules and regulations imposed by my institution and my government."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"yes","quote":"I will not attempt to establish or retrieve the identity of the study participants."},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-ARIC-DMDA","name":"ARIC Data and Materials Distribution Agreement","short_name":"ARIC DMDA","url":"https://aric.cscc.unc.edu/aric9/sites/default/files/publications/policies/ARIC%20DMDA%2012.15.2023.pdf","version":"NHLBI ARIC DMDA Template, version date 2023-12-15","summary":"Signed by the recipient institution after ARIC approves a manuscript or ancillary study proposal. Data may only be used for that research project, with IRB review, and may not be passed on in any form. Manuscripts go to ARIC for review, results are reported back yearly, and all data are destroyed when the agreement ends (at the latest after five years).","purpose":"approved_project","rules":{"commercial_use":{"value":"unspecified","note":"The agreement neither allows nor forbids commercial use. Its signature page lets a \"[for-profit] corporation/institution\" sign and section 16 mentions resulting commercial products, but use is limited to the approved research project.","quote":"Recipient and Recipient's PI agree not to claim, infer, or imply United States Government endorsement of the Research Project, the entity, or personnel conducting the Research Project, or any resulting commercial product(s) except as described in section 7."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. Any use must be part of the approved research project."},"derivatives":{"value":"conditional","note":"Only within the approved research project.","quote":"Recipient and Recipient's PI agree that Data, Materials, their progeny, or derivatives thereof will not be used in any experiments or procedures unless said experiments or procedures are disclosed and approved as part of the Research Project."},"publication":{"value":"conditional","note":"With the ARIC acknowledgement and after ARIC review of abstracts and manuscripts.","quote":"Nothing in this section precludes Recipient from publishing results of the Research Project through the usual channels of scientific publication."},"redistribute_original":{"value":"no","quote":"Recipient and Recipient's PI further agree not to transfer Data, Materials and their progeny, and derivatives thereof, with or without charge, to any other entity or individual, except for Data and/or Materials as provided for in section 4.2 above."},"redistribute_derivatives":{"value":"no","note":"Resultant data go to ARIC, which may distribute them through NHLBI procedures.","quote":"Recipient and Recipient's PI further agree not to transfer Data, Materials and their progeny, and derivatives thereof, with or without charge, to any other entity or individual, except for Data and/or Materials as provided for in section 4.2 above."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Recipient and Recipient's PI agree to acknowledge the contribution of ARIC in any and all oral and written presentations, disclosures, and publications resulting from any and all analyses of Data or Materials, in accordance with the guidelines established by the study."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"Signed by the recipient's PI, an authorized representative of the institution and the ARIC Coordinating Center, after ARIC approves a manuscript or ancillary study proposal.","quote":"I agree to abide by the terms and conditions laid out in this agreement and acknowledge that I am steward of the data and/or materials for the duration of this agreement"},"ethics_approval":{"value":"yes","quote":"Recipient and Recipient's PI agrees to use the Data and/or Materials only in conjunction with the Research Project that has been reviewed by the Recipient's Institutional Review Board (IRB) or similar human subjects oversight body in accordance with Department of Health and Human Services regulations at 45 CFR Part 46."},"publication_review":{"value":"yes","note":"Abstracts are requested 10 days and manuscripts 30 days before submission.","quote":"If a manuscript results from the Research Project, then the manuscript must be submitted for review by ARIC."},"code_release":{"value":"no"},"return_results":{"value":"yes","note":"A report based on the resultant data is also due every 12 months.","quote":"Recipient and Recipient's PI agree to provide Resultant Data to ARIC in accordance with applicable NIH and NHLBI data sharing policies in place as of the effective date of this agreement."},"delete_after_use":{"value":"yes","note":"The agreement ends at the latest five years after it takes effect.","quote":"Recipient agrees to destroy all copies of all Data received from ARIC and consult with ARIC and the NHLBI regarding the disposition of all remaining Materials."},"no_reidentification":{"value":"yes","quote":"Recipient and Recipient's PI agree that Materials and/or Data will not be used, either alone or in conjunction with any other information, in any effort to determine the individual identities of any of the participants from whom Data and/or Materials were obtained or derived."},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-ASPREE-Data-Use-Policy","name":"ASPREE Data Use Policy","short_name":"ASPREE data use policy","url":"https://ams.aspree.org/public/files/ASPREE_Data_Use_Policy_v1_0.pdf","version":"Version 1.0, 21 May 2020","summary":"ASPREE data go only to project proposals approved by the ASPREE International Executive Committee, with ethics approval and a signed memorandum of understanding; sub-study data also need the sub-study principal investigator's approval. Data stay in the ASPREE Safe Haven by default, and draft manuscripts are reviewed by the committee.","purpose":"approved_project","rules":{"commercial_use":{"value":"unspecified","note":"The policy neither allows nor forbids commercial use. It names collaboration and publishing research findings as the aims of sharing."},"model_training":{"value":"unspecified","note":"The policy does not mention machine learning."},"derivatives":{"value":"unspecified","note":"The policy does not address derived data."},"publication":{"value":"conditional","note":"Only for an approved project proposal. Draft manuscripts go to the International Executive Committee for review.","quote":"This approval is required prior to the submission of the work for presentation or publication of any form."},"redistribute_original":{"value":"no","note":"The default access route is the ASPREE Safe Haven. Extracts outside it need a data use agreement approved by Monash University and the Berman Center.","quote":"Each Principal Investigator will be responsible for managing this access to the ASPREE dataset in keeping with the principles of this data use policy, including ensuring the data requested will be stored in a secured environment and will not be shared with others except listed co-investigators on that analysis."},"redistribute_derivatives":{"value":"unspecified","note":"The policy does not say whether derived data may be shared."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"unspecified","note":"The policy has no citation or acknowledgement clause."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"Data extracts outside the Safe Haven need a data use agreement approved by Monash University and the Berman Center (HHRI).","quote":"Access requires the signing of a MOU by the Investigator within the ASPREE Safe Haven."},"ethics_approval":{"value":"yes","quote":"Access to the safe haven will be provided to approved project proposals for research that has ethics approval."},"publication_review":{"value":"yes","quote":"If your application is successful, you will be granted reserved data access for six months, after which it is expected that you will produce a draft manuscript for review by the International Executive Committee (if you have not already published).","source":"https://ams.aspree.org/public/request-data/access-aspree-data/"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"no","note":"The policy commits ASPREE to de-identifying released extracts but has no clause addressed to users. The MoU text is not published."},"geographic_restriction":{"value":"no","note":"The policy names no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-ATLAS-Terms-of-Use","name":"ATLAS Terms of Use (University of Southern California)","short_name":"ATLAS Terms of Use","url":"https://goo.gl/forms/KwCljKSLWbbHWalD2","version":"Terms shown on the \"Request for ATLAS Dataset\" Google form linked from the INDI ATLAS page, read October 2026","summary":"Research or statistical use only, after submitting a request form that the ATLAS team reviews before sending a per-person decryption key. No redistribution without written agreement of USC, no re-identification, and publications must cite ATLAS and be reported to the ATLAS team.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The terms limit use to research or statistics but do not mention commercial use. A definitions section describes an authorized user as \"A faculty member, staff member, or student at a member institution\", without saying who the member institutions are.","quote":"-To use these datasets solely for research or statistical purposes and not for investigation of specific RESEARCH SUBJECTS"},"model_training":{"value":"unspecified","note":"The terms do not mention machine learning; the dataset itself was released to develop segmentation algorithms."},"derivatives":{"value":"unspecified","note":"The terms do not mention derived data."},"publication":{"value":"conditional","note":"Allowed with the recommended citations; citations of the published work must be sent to the ATLAS team.","quote":"You agree to reference the recommended bibliographic citation(s) in any publication that employs these resources."},"redistribute_original":{"value":"no","note":"Only with written agreement of USC. Each person must request their own decryption key.","quote":"-You agree not to redistribute data or other materials without the written agreement of USC."},"redistribute_derivatives":{"value":"unspecified","note":"The terms do not say whether derived data such as new lesion masks count as \"other materials\".","quote":"-You agree not to redistribute data or other materials without the written agreement of USC."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"You agree to reference the recommended bibliographic citation(s) in any publication that employs these resources."},"share_alike":{"value":"conditional","note":"Data shared with USC's written agreement must be passed on together with these terms.","quote":"When sharing data or other materials in these approved ways, you must include all accompanying files with the data, including terms of use."},"signed_agreement":{"value":"yes","note":"The request form asks for name, position, affiliation and intended use; the ATLAS team reviews it before sending a decryption key.","quote":"Please read the terms of use below. By submitting this form, you are agreeing to these terms of use."},"ethics_approval":{"value":"no","note":"The terms do not ask for IRB approval. They require compliance with the law and with research codes of conduct, and violations may be reported to the user's IRB."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"conditional","note":"Only citations of published work must be sent, not data or results.","quote":"Authors of publications based on ATLAS data are required to send citations of their published works to the ATLAS team at USC for inclusion in a database of related publications (npnl@usc.edu)."},"delete_after_use":{"value":"conditional","note":"Only as a sanction if USC finds that the terms were violated. Nothing requires deletion when a project ends.","quote":"USC may revoke the existing agreement, demand the return of the data in question, and deny all future access to USC data."},"no_reidentification":{"value":"yes","note":"The terms also state that any intentional identification of a research subject violates the promise of confidentiality.","quote":"-To make no use of the identity of any RESEARCH SUBJECT discovered inadvertently, and to advise the ATLAS team of any such discovery (npnl@usc.edu)"},"geographic_restriction":{"value":"no","note":"The terms name no countries or regions."}},"commercial_license":{"available":"unspecified"},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-CSIRO-Data-Licence","name":"CSIRO Data Licence","short_name":"CSIRO Data Licence","url":"https://research.csiro.au/dap/licences/csiro-data-licence/","version":"Licence deed in the CSIRO Data Access Portal user guide, read 2026-10-08 (retired for new collections on 2021-07-15)","summary":"A personal, non-transferable licence for non-commercial use of data on the CSIRO Data Access Portal. The data may not be passed on, and no patent or other IP rights may be claimed over it. Free hardcopy products and non-editable images based on the data may be shared, and CSIRO must not be presented as endorsing the use or its results.","purpose":"noncommercial","rules":{"commercial_use":{"value":"no","quote":"CSIRO grants you a royalty-free, non-exclusive, non-transferable licence to use the Data solely for your non commercial purposes."},"model_training":{"value":"conditional","note":"The licence does not mention models. Training falls under use, which is allowed for non-commercial purposes.","quote":"CSIRO grants you a royalty-free, non-exclusive, non-transferable licence to use the Data solely for your non commercial purposes."},"derivatives":{"value":"conditional","note":"The licence assumes use of the data in adapted form, within non-commercial purposes.","quote":"“commercial purpose” means to sell, hire, exchange or otherwise use or exploit the Data (whether in its original or any adapted form, or incorporated in or used in the provision of any products or services) for profit or gain."},"publication":{"value":"conditional","note":"Free, non-editable outputs such as PDF papers may be distributed.","quote":"Notwithstanding the foregoing, you may create and distribute hardcopy products and non-editable digital images (eg: pdf files) based on or containing the Data, provided they are distributed at no charge and revenue is not generated to offset any free distribution (eg. advertising/sponsorship)."},"redistribute_original":{"value":"no","quote":"You may not distribute the Data to any other person"},"redistribute_derivatives":{"value":"conditional","note":"Only hardcopy products and non-editable digital images, free of charge. The licence does not address other derived data such as labels or processed volumes.","quote":"Notwithstanding the foregoing, you may create and distribute hardcopy products and non-editable digital images (eg: pdf files) based on or containing the Data, provided they are distributed at no charge"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"You must comply with any protocols concerning the attribution of rights in the Data."},"share_alike":{"value":"no"},"signed_agreement":{"value":"no","note":"Public collections under this licence download from the Data Access Portal without an account."},"ethics_approval":{"value":"no","note":"The terms set no such condition. Your institution or local law may still require it for data about people."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"no","note":"The terms set no such condition. Your institution or local law may still require it for data about people."},"geographic_restriction":{"value":"no"}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-CUHK-CMB-3DCNN-Terms","name":"CUHK 3D CNN cerebral microbleed code and data release terms (readme.txt)","short_name":"CUHK CMB-3DCNN terms","url":"http://www.cse.cuhk.edu.hk/~qdou/cmb-3dcnn/cmb-3dcnn-data.zip","version":"readme.txt in cmb-3dcnn-data.zip (archive dated 2016-04-28), read 2026-10-08","summary":"Not a formal license. A short notice in the data archive reserves all rights to The Chinese University of Hong Kong, releases the code and data for research only, asks users to cite the TMI 2016 paper and to contact the authors about any commercial use.","purpose":"research","rules":{"commercial_use":{"value":"no","note":"Commercial use needs prior contact with the authors; the notice grants no commercial rights.","quote":"Our code and data are ONLY released for research purpose. Any commercial intention, please first contact qdou@cse.cuhk.edu.hk"},"model_training":{"value":"conditional","note":"Allowed for research.","quote":"Also, please feel free to develop or test your own CMB detection systems using our released dataset."},"derivatives":{"value":"unspecified","note":"The notice does not mention derived data such as new labels or processed images."},"publication":{"value":"yes","quote":"*** If you plan to use our code or data in your work, please cite this paper. ***"},"redistribute_original":{"value":"no","note":"The notice reserves all rights and grants no right to pass the data on.","quote":"All rights preserved by The Chinese University of Hong Kong."},"redistribute_derivatives":{"value":"unspecified"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"*** If you plan to use our code or data in your work, please cite this paper. ***"},"share_alike":{"value":"no"},"signed_agreement":{"value":"no","note":"The archive downloads from the project page without registration."},"ethics_approval":{"value":"no","note":"The terms set no such condition. Your institution or local law may still require it for data about people."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"no","note":"The terms set no such condition. Your institution or local law may still require it for data about people."},"geographic_restriction":{"value":"no"}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-CamCAN-DUA","name":"CamCAN Project Terms and Conditions","short_name":"CamCAN DUA","url":"https://opendata.mrc-cbu.cam.ac.uk/projects/camcan/","version":"Project Terms and Conditions on the MRC-CBU data portal CamCAN page, read October 2026","summary":"Managed access for non-commercial, ethical research described in an approved proposal; students cannot apply themselves. Data must stay on the institution's server and may not be passed on. Publications must be open access, and derived data plus the scripts that produced them must be shared on an open repository.","purpose":"approved_project","rules":{"commercial_use":{"value":"no","quote":"I will use the data only for the purposes of non-commercial, ethical research in this application and to seek the approval of CamCAN (via the CamCAN Administrator) for any other proposed use."},"model_training":{"value":"unspecified","note":"The terms do not mention machine learning. The project page warns that requests mentioning only \"something about AI and data mining\" with a vague hypothesis are often rejected.","source":"https://opendata.mrc-cbu.cam.ac.uk/projects/camcan/"},"derivatives":{"value":"yes","quote":"Any derived data and processing scripts used to produce those derived data will also be made available on a suitable open-access data repository."},"publication":{"value":"conditional","note":"Publications must be open access and include the mandatory CamCAN acknowledgement and methods text.","quote":"I agree to make any publications that arise from use of CamCAN data open-access."},"redistribute_original":{"value":"no","note":"Team members may use the data if they comply with the agreement; data must not be copied to external storage.","quote":"I will not further disclose these data beyond the uses outlined in this agreement."},"redistribute_derivatives":{"value":"yes","note":"Sharing derived data openly is not only allowed but required.","quote":"Any derived data and processing scripts used to produce those derived data will also be made available on a suitable open-access data repository."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"I will acknowledge the CamCAN project as a source of data and include language similar to the following"},"share_alike":{"value":"no","note":"No license is imposed on shared adaptations, but derived data must be placed on an open-access repository."},"signed_agreement":{"value":"yes","note":"Accepted with an online request including a ~200-word proposal, which CamCAN reviewers approve or reject.","quote":"I request access to data collected by the Cambridge Centre for Ageing Neuroscience (CamCAN) for the purpose of scientific investigation or the planning of clinical research studies and agree to the following terms"},"ethics_approval":{"value":"conditional","note":"No approval is demanded by the terms themselves, only compliance with whatever your institution's IRB requires.","quote":"I will comply with any rules and regulations imposed by my institution and its institutional review board in requesting these data."},"publication_review":{"value":"no"},"code_release":{"value":"yes","quote":"Any derived data and processing scripts used to produce those derived data will also be made available on a suitable open-access data repository."},"return_results":{"value":"conditional","note":"Errors found in the data must be reported to CamCAN. Derived data go to an open repository rather than back to CamCAN.","quote":"I also agree to make any such errors known to CamCAN as soon as possible."},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"yes","quote":"I will receive access to de-identified data and will not attempt to establish the identity of, or attempt to contact, any of the CamCAN participants."},"geographic_restriction":{"value":"conditional","note":"No countries are named, but the data must stay on the user's institutional server.","quote":"I will not copy data to external storage locations (such as dropbox, google drive or external harddrives) and understand data must remain on my institution's server."}},"commercial_license":{"available":"unspecified"},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-DIAN-Obs-Data-Terms","name":"DIAN Observational Study Data Request Terms and Obligations","short_name":"DIAN Obs data terms","url":"https://dian.wustl.edu/for-investigators/dian-observational-study-investigator-resources/data-request-terms-and-instructions/","version":"DIAN Obs Data Request Terms & Instructions web page, with the request form and publication policy, read 2026-10-08","summary":"Research use within a project approved by the DIAN Obs PI and core leaders, after IRB documentation, a signed Code Access Agreement and a Data Use Agreement. No sharing with third parties without Steering Committee permission, all generated data go back to DIAN, publications name DIAN as an author and manuscripts go to DIAN 4 weeks before journal submission.","purpose":"approved_project","rules":{"commercial_use":{"value":"unspecified","note":"The terms neither allow nor forbid commercial use. They limit use to research within the approved request, and the request form lists industry as a possible funding source.","quote":"CAA: a simple statement that the recipient of the data signs, verifying they will use the data only for research purposes and will not attempt to identify any individual participant.","source":"https://dian.wustl.edu/for-investigators/dian-observational-study-investigator-resources/data-and-biospecimens-available-for-request/"},"model_training":{"value":"unspecified","note":"The terms do not mention machine learning."},"derivatives":{"value":"conditional","note":"Generating new data is expected, but everything generated goes back to DIAN and into the DIAN Obs repository.","quote":"All generated data must be returned to the DIAN Obs Biostatistics Core for required processing, including unblinding when applicable.","source":"https://dian.wustl.edu/dian-observational-data-request-form/"},"publication":{"value":"conditional","note":"With the required funding acknowledgement, DIAN as a consortium author, and after DIAN review of the manuscript.","quote":"Acceptance of DIAN Obs data obligates the recipient to cite/reference the NIA grant (Dominantly Inherited Alzheimer Network, U19AG032438) and the Alzheimer’s Association (SG-20-690363-DIAN) in any presentation or publication that may result from this research."},"redistribute_original":{"value":"no","note":"Only with permission of the DIAN Obs Steering Committee. Approval covers only the requesting laboratory.","quote":"No sharing of data with a third party is allowed without permission of the DIAN Obs Steering Committee."},"redistribute_derivatives":{"value":"unspecified","note":"The terms do not say whether derived data such as labels count as DIAN Obs data. Generated data must be returned to DIAN and deposited in the DIAN Obs repository.","quote":"No sharing of data with a third party is allowed without permission of the DIAN Obs Steering Committee."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"All publications based on DIAN Obs data or tissue must include “Dominantly Inherited Alzheimer Network (DIAN)” as an author.","source":"https://dian.wustl.edu/for-investigators/dian-observational-study-investigator-resources/publication-policy/"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"A signed Code Access Agreement and a Data Use Agreement between the institutions are both required.","quote":"Investigators requesting data also will be required to sign a data user agreement (DUA) and an acknowledgment agreement, as specified below."},"ethics_approval":{"value":"yes","note":"An IRB approval, or an IRB statement that the analysis of coded data is not human subjects research.","quote":"Recipient of data/biospecimens will provide documentation of IRB approval valid for the analysis of DIAN Obs data/biospecimens (or acknowledgment from your IRB that receiving coded data/biospecimens without access to identifiers is not considered “research” requiring review)."},"publication_review":{"value":"yes","note":"Manuscripts go to the DIAN Obs Administration Core at least 4 weeks before journal submission.","quote":"at least 4 weeks prior to submission to a journal in order to allow time for review and response to recommendations.","source":"https://dian.wustl.edu/for-investigators/dian-observational-study-investigator-resources/publication-policy/"},"code_release":{"value":"no"},"return_results":{"value":"yes","note":"The form also requires that generated data be deposited in the DIAN Obs repository. Publications and resulting grants must be reported to DIAN.","quote":"All generated data must be returned to the DIAN Obs Biostatistics Core for required processing, including unblinding when applicable.","source":"https://dian.wustl.edu/dian-observational-data-request-form/"},"delete_after_use":{"value":"conditional","note":"Only individual mutation status data must be destroyed. Nothing is said about the other data.","quote":"Guarantee that individual mutation status data will be destroyed when analyses are complete.","source":"https://dian.wustl.edu/for-investigators/dian-observational-study-investigator-resources/data-and-biospecimens-available-for-request/"},"no_reidentification":{"value":"yes","quote":"CAA: a simple statement that the recipient of the data signs, verifying they will use the data only for research purposes and will not attempt to identify any individual participant.","source":"https://dian.wustl.edu/for-investigators/dian-observational-study-investigator-resources/data-and-biospecimens-available-for-request/"},"geographic_restriction":{"value":"no","note":"The terms name no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-DIAN-TU-Sharing-Policy","name":"DIAN-TU Data and Biospecimen Sharing, Publication, Authorship and Citation Policies","short_name":"DIAN-TU sharing policy","url":"https://dian.wustl.edu/app/uploads/2026/07/DIANTUResourceSharePublAuthorPolicy_Ver2.1_20July2026_Final.pdf","version":"Version 2.1, 20 July 2026","summary":"Qualified researchers get de-identified trial data for research approved by DIAN-TU, with Industry Collaborators able to review requests and manuscripts. Requires IRB or ethics documentation and a Data Use Agreement; no sharing with third parties; data destroyed after analysis; every publication or presentation is reviewed and approved by DIAN-TU first.","purpose":"approved_project","rules":{"commercial_use":{"value":"unspecified","note":"The policy neither allows nor forbids commercial use. It limits use to research approved by DIAN-TU, and Industry Collaborators may review requests that concern their study drug.","quote":"The data will only be used for research purposes, and the recipient will not attempt to identify any individual participant."},"model_training":{"value":"unspecified","note":"The policy does not mention machine learning."},"derivatives":{"value":"conditional","note":"Only the analyses approved in the data request. Where sharing the data risks trial integrity, the DIAN-TU Biostatistics Core may run the analyses instead of releasing the data.","quote":"Recipients of DIAN-TU data and/or biospecimens agree to only use the data/biospecimens in accordance with the ways approved by the DIAN-TU."},"publication":{"value":"conditional","note":"Only after DIAN-TU approval, with the required authorship, acknowledgements and data display rules.","quote":"All communications must be requested, reviewed, and approved by the DIAN-TU before they are published, presented, or appear in public."},"redistribute_original":{"value":"no","quote":"No sharing of data or biospecimens with a third party are allowed."},"redistribute_derivatives":{"value":"unspecified","note":"The policy does not say whether derived data such as labels count as DIAN-TU data.","quote":"No sharing of data or biospecimens with a third party are allowed."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Manuscripts, abstracts, posters, and lecture presentations must adhere to the acknowledgment requirements defined in Section IV Authorship and Citation Policy and the Data Use Agreement, including acknowledgement of National Institute on Aging (NIA) of the National Institutes of Health (NIH) support using the NIA-NIH grant numbers for the DIAN-TU, the other financial sponsors of the DIAN-TU, and the DIAN-TU Study Team."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"Required after approval, but prior to receipt of data and/or biospecimens: a. Fully executed Data Use Agreement"},"ethics_approval":{"value":"yes","note":"An IRB or ethics approval, or an IRB statement that analysing coded data is not human subjects research.","quote":"Provide documentation of Institutional Review Board (IRB) or Ethics Committee (EC) approval valid for the analysis of DIAN-TU Trial data or Non-Human Subjects Exemption"},"publication_review":{"value":"yes","note":"90 days for manuscripts with MK-6240 tau PET data. Industry Collaborators review publications that include their study drug data.","quote":"Manuscripts must be submitted to the DIAN-TU at least 60* days prior to submission to a journal to allow time for review and response to recommended edits."},"code_release":{"value":"conditional","note":"The code goes to the DIAN-TU Biostatistics Core, not to the public.","quote":"The requestor will provide the statistical code to the DIAN-TU Biostatistics Core for reproducibility purposes."},"return_results":{"value":"conditional","note":"Applies to data generated from biospecimens. Accepted publications must also be sent to DIAN-TU.","quote":"Data generated by recipients of DIAN-TU biospecimens must be provided back to the DIAN- TU to support the NIH requirements of reproducibility of findings and to further enhance the DIAN-TU database."},"delete_after_use":{"value":"yes","quote":"All data provided by the DIAN-TU will be destroyed when analyses are complete."},"no_reidentification":{"value":"yes","quote":"The data will only be used for research purposes, and the recipient will not attempt to identify any individual participant."},"geographic_restriction":{"value":"no","note":"The policy names no countries or regions where the data may be used."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-DPAU-DAA","name":"Dementias Platform Australia (DPAU) Data Access Agreement","short_name":"DPAU DAA","url":"https://www.unsw.edu.au/content/dam/pdfs/medicine-health/dementias-platform/data-portal-supporting-documents/2026-07-dpau-data-access-agreement-20260902.pdf","version":"Version_20260902, with the DPAU Data Access Policy (Version 20260901)","summary":"Access for bona fide researchers to the cohorts hosted by Dementias Platform Australia at UNSW, after an application reviewed by DPAU and each contributing study, with ethics approval and fees. Data may be used only for the approved project, normally inside the DPAU analysis environment, may not be copied or distributed, and results may be used for commercial gain only with approval of every contributing study. Publications go to DPAU and the studies 30 working days before submission.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"Only with express approval from every contributing research study (CRS) in the application.","quote":"utilise the results of research exclusively for public benefit and not for commercial gain, unless this was expressly approved as part of our application process by each and all relevant CRS."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. The application form lists machine learning as a project type, and any use must stay within the approved application."},"derivatives":{"value":"conditional","note":"New variables are declared in the application and created within the approved project.","quote":"Please detail any new variables that may be generated during your project, e.g. a summary score such as a frailty index.","source":"https://www.unsw.edu.au/content/dam/pdfs/medicine-health/dementias-platform/data-portal-supporting-documents/2026-05-dpau_data_access_application_guidance.pdf"},"publication":{"value":"conditional","note":"Contributing studies may object to or delay a publication (normally by at most 3 months) and may ask for confidential information to be removed.","quote":"DPAU Users wishing to publish results, Data and/or other information acquired/generated from their use of the Approved CRS Data will inform DPAU and relevant CRS(s) with prior written notice (including a reasonable summary of the proposed publication), together with a copy of such publication(s) at least thirty (30) working days prior to submission of any such publication(s)."},"redistribute_original":{"value":"no","quote":"The DPAU Users understands and acknowledges that the data accessed from the DPAU may not be copied or distributed in any form."},"redistribute_derivatives":{"value":"conditional","note":"Only summary outputs leave the analysis environment, after approval, and only through the publication process. The agreement says nothing about sharing derived data such as labels.","quote":"Summary figures and tables for the purposes of reporting on the analysis may be exported following additional approval using File Out function, which may take 72 hours to complete.","source":"https://www.unsw.edu.au/content/dam/pdfs/medicine-health/dementias-platform/data-portal-supporting-documents/2026-05-dpau_data_access_application_process.pdf"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","note":"Contributing studies may also ask for named co-authors.","quote":"All intended publications arising from the use of the DPAU shall include an acknowledgement of DPAU and the other acknowledgments set out in the “Procedures” section of this Schedule 1."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"Once an application is approved by DPAU and the relevant CRS, DPAU will require the requesting the lead researcher’s institution (which is usually the lead institution for their collaboration) and all project team members seeking to access data on DPAU Analysis Environment to sign the Data Access Agreement.","source":"https://www.unsw.edu.au/content/dam/pdfs/medicine-health/dementias-platform/data-portal-supporting-documents/2026-05-dpau_data_access_policy.pdf"},"ethics_approval":{"value":"conditional","note":"If the applicant's organisation does not require ethics approval for the project, the application must say so explicitly.","quote":"All applications must include details of the ethics approval for the proposed project.","source":"https://www.unsw.edu.au/content/dam/pdfs/medicine-health/dementias-platform/data-portal-supporting-documents/2026-05-dpau_data_access_policy.pdf"},"publication_review":{"value":"yes","quote":"DPAU Users wishing to publish results, Data and/or other information acquired/generated from their use of the Approved CRS Data will inform DPAU and relevant CRS(s) with prior written notice (including a reasonable summary of the proposed publication), together with a copy of such publication(s) at least thirty (30) working days prior to submission of any such publication(s)."},"code_release":{"value":"conditional","note":"Code goes to DPAU for other platform users, not necessarily to the public.","quote":"The DPAU Users will share all code, statistical scripts or otherwise with DPAU for the benefit of other users of the DPAU."},"return_results":{"value":"conditional","note":"Publications and code are reported to DPAU. The agreement does not ask for derived data to be returned.","quote":"DPAU Userss should update DPAU as soon as the paper is submitted, accepted and published so DPAU is aware of all results entering the public domain and there is sufficient notice to arrange any publicity of the findings."},"delete_after_use":{"value":"conditional","note":"Data in the DPAU analysis environment cannot be downloaded, so access ends with the project. Data provisioned outside that environment need a separate agreement, which is not published.","quote":"At the end of the period the access to the DPAU Analysis Environment will automatically terminate."},"no_reidentification":{"value":"yes","quote":"not to attempt to establish the identity of any individual to which the data relates."},"geographic_restriction":{"value":"no","note":"The agreement and the access policy name no countries or regions."}},"commercial_license":{"available":"unspecified","note":"No commercial license offer is published. Commercial gain from results needs approval from every contributing study."},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-DZNE-Clinical-Research-Regulations","name":"Regulations for use of Clinical Research databases, data and biomaterials of the DZNE","short_name":"DZNE use regulations","url":"https://www.dzne.de/fileadmin/Dateien/editors/documents/Klinische_Forschung/Formulare_Templates/Nutzungsordnung_Datenbanken_EN.pdf","version":"Version 2.0 of 25 September 2019","summary":"Data from DZNE clinical studies are released per project after a written application with an ethics vote is approved by the study steering committee or the DZNE Clinical Board. External researchers sign a data use agreement. Direct commercial use is excluded, publications go to the DZNE 30 days before submission and DZNE co-authorship is expected.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"Indirect commercial use (research with later profit-oriented intentions) needs approval and a licence fee.","quote":"The direct commercial use of the data and biomaterials is excluded. The use of the data and biomaterials for indirect commercial use, e.g. for scientific cooperation between industry and scientific institutes is possible upon approval."},"model_training":{"value":"unspecified","note":"The regulations do not mention machine learning. Use is limited to the approved project."},"derivatives":{"value":"unspecified","note":"The regulations do not address derived data."},"publication":{"value":"conditional","note":"The DZNE may delay publication by up to 90 more days for a patent application.","quote":"Unless the DZNE, having received a draft version of the publication from the data user, objects to the publication within thirty (30) days, the feature may be published."},"redistribute_original":{"value":"unspecified","note":"The regulations only state that passing biomaterials to third parties needs an application. Sharing of data is left to the unpublished data use agreement.","quote":"Utilisation of the transferred data or the provided biomaterials shall exclusively be granted for the use applied for under the conditions agreed in line with the application that may have been approved with restrictions and shall be bound by the duration of the project and/or the validity of the Data Use Agreement and/or Material Transfer Agreement."},"redistribute_derivatives":{"value":"unspecified"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Participation of the DZNE in publications in the form of co-authorship is required by the DZNE in line with the rules of good scientific practice and should correspond to the agreements made in advance."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"In the case of external researchers (researchers not connected to the DZNE) the transfer and use is set out in a Data Use Agreement between the DZNE and the receiving institute."},"ethics_approval":{"value":"yes","quote":"Valid ethic committee vote approving the intended activities"},"publication_review":{"value":"yes","quote":"All written publications concerning data from Clinical Research databases of the DZNE must, at least thirty (30) days prior to submission for publication, be presented to the Clinical Board of the DZNE for evaluation."},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Only an electronic copy of each publication must be sent to the DZNE."},"delete_after_use":{"value":"unspecified","note":"Use ends with the project or the agreement, but the regulations do not say whether data must be deleted.","quote":"Utilisation of the transferred data or the provided biomaterials shall exclusively be granted for the use applied for under the conditions agreed in line with the application that may have been approved with restrictions and shall be bound by the duration of the project and/or the validity of the Data Use Agreement and/or Material Transfer Agreement."},"no_reidentification":{"value":"unspecified","note":"The regulations do not address re-identification by data users. The unpublished data use agreement may."},"geographic_restriction":{"value":"conditional","note":"No country is excluded, but applications from countries with weaker data protection get an extra review.","quote":"The data protection officer of the DZNE shall, where appropriate, be consulted in the event of applications by third countries whose data protection regulations are considered unsafe or if there are deviations from the data protection concept."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-EPAD-VIMI-Terms","name":"EPAD Terms and Conditions for accessing the V.IMI Dataset","short_name":"EPAD V.IMI Terms","url":"https://alzheimer.noemi.lu/wp-content/uploads/2021/06/EPAD_V.IMI-Dataset_Terms-and-Conditions-V2.0.pdf","version":"Document version 2.0, 1 June 2021","summary":"One-page terms accepted when requesting EPAD LCS data or images through the AD Data Initiative. The data serve Alzheimer's disease research, analyses should follow the research question submitted with the request and be published, data must not be passed to third parties, and publications must carry set acknowledgement elements.","purpose":"approved_project","rules":{"commercial_use":{"value":"unspecified","note":"The terms neither allow nor forbid commercial use. They tie use to Alzheimer's disease science and to the research question submitted with the access request.","quote":"On behalf of my research group accessing the EPAD V.IMI Dataset, I acknowledge that this data is for the advancement of scientific understanding of Alzheimer's disease."},"model_training":{"value":"unspecified"},"derivatives":{"value":"unspecified"},"publication":{"value":"yes","note":"Publication in peer-reviewed journals is expected, with the acknowledgement elements the terms list.","quote":"As such I will make every effort to ensure that the analysis undertakes from the data will comply with the research question submitted as part of the access process and that this analysis will be published in peer reviewed scientific journals."},"redistribute_original":{"value":"no","note":"Third parties have to request access themselves through the EPAD access system.","quote":"I also acknowledge that in accessing this data I will not pass these data onto a third party."},"redistribute_derivatives":{"value":"unspecified","note":"The terms do not say whether derived data such as labels or image-derived measures count as \"these data\".","quote":"I also acknowledge that in accessing this data I will not pass these data onto a third party."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","note":"The elements are the ClinicalTrials.gov identifier NCT02804789, the V.IMI dataset DOI 10.34688/epadlcs_v.imi_20.10.30 and the IMI grant 115736 and Alzheimer's Association grant SG 21-818099-EPAD.","quote":"The papers generated using EPAD data and/or samples must include the following elements:"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"The terms are accepted as part of an access request on the AD Data Initiative portal, which the EPAD team reviews.","quote":"On behalf of my research group accessing the EPAD V.IMI Dataset, I acknowledge that this data is for the advancement of scientific understanding of Alzheimer's disease."},"ethics_approval":{"value":"no"},"publication_review":{"value":"unspecified","note":"The terms do not ask for a manuscript review themselves but point to a separate EPAD publication policy, which could not be retrieved from the EPAD website.","quote":"Please refer to the EPAD Policy document for Publications on the EPAD website."},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"no","note":"The terms do not mention re-identification. Data protection law still applies."},"geographic_restriction":{"value":"no","note":"The terms name no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-HABS-DUA","name":"Harvard Aging Brain Study (HABS) Data Use Agreement","short_name":"HABS DUA","url":"https://www.synapse.org/Synapse:syn65660688","version":"HABS DUA Click Wrap v.2 on Synapse (access requirement 9606742, October 2025), with the HABS guidance on AI tools","summary":"Click-through agreement on Synapse after a reviewed request with an intended data use statement. Data may only be used for the stated study, stay inside the recipient's institution and must be destroyed at the end. The data may not be sold or commercialized, publications must acknowledge and cite HABS and be reported to the HABS data committee, and use from listed countries of concern is barred.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"Requests are open to academic, industry and student researchers, but the data themselves may not be sold or commercialized. Whether a commercial product built with the data is allowed is not stated.","quote":"To not sell or otherwise commercialize the Data."},"model_training":{"value":"conditional","note":"Training must not run on third-party computing services that retain or share user content, and the data must not leave the recipient's institution.","quote":"The use of HABS data in training is both permitted and encouraged, provided that the process is carried out in compliance with the DUA as outlined above.","source":"https://www.synapse.org/Synapse:syn53910452/wiki/631009"},"derivatives":{"value":"unspecified","note":"The agreement does not mention derived data."},"publication":{"value":"conditional","note":"With the HABS acknowledgement, the Dagley et al. citation, the release version and a notice to the HABS data committee.","quote":"For use of Data that results in a publication or other public presentation, Recipient is required to:"},"redistribute_original":{"value":"no","note":"Collaborators inside the institution must agree to the terms and be named in an approved request.","quote":"Recipient shall not transfer the Data outside of Recipient's Institution (this can include the use of large language models and other AI tools)."},"redistribute_derivatives":{"value":"unspecified","note":"The agreement does not say whether derived data count as Data."},"share_model_weights":{"value":"conditional","note":"The HABS guidance assumes weights may be published, and asks investigators to check that the model cannot reproduce parts of the data. It does not address selling weights.","quote":"However, investigators who intend on making the weights of a trained model publicly available should consider whether the model could be used to easily reconstruct parts of the HABS data set.","source":"https://www.synapse.org/Synapse:syn53910452/wiki/631009"},"attribution":{"value":"yes","quote":"Acknowledge the HABS project and its funding sources in the Acknowledgments section using the following, a substantially similar statement, or an updated statement/reference as provided on the study website or via the chief data officer or PI;"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"By accepting this Agreement and submitting a request, Recipient certifies that they are accepting the terms on behalf of Recipient Institution."},"ethics_approval":{"value":"conditional","note":"IRB approval only where the recipient's institution requires it.","quote":"By accepting this Agreement, Recipient warrants that all Institution-required approvals are in place for the use of the Data. Such approvals may include, as applicable, Institutional Review Board (\"IRB\") approval and approval of the terms and conditions of this Agreement."},"publication_review":{"value":"conditional","note":"Submissions must be reported to the HABS data committee, which checks the acknowledgements. No content review is described.","quote":"Notify the HABS data committee, via the chief data officer (at present Michael Properzi at MPROPERZI@mgh.harvard.edu), of any publication submissions (including submission title, first and last author, and the journal submitted to) related to Recipient's use of the Data to confirm that the acknowledgements above have been faithfully executed in the manuscript."},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Recipients must answer requests about their use of the data and resulting publications, but need not return results."},"delete_after_use":{"value":"yes","quote":"Upon expiration or early termination of this Agreement, Recipient shall destroy the Data provided, however, that Recipient may retain one (1) copy of the Data to the extent necessary to comply with the records retention requirements under any law, and for the purposes of research integrity and verification."},"no_reidentification":{"value":"yes","quote":"To not attempt to re-identify the Data in any way."},"geographic_restriction":{"value":"yes","note":"From the HABS Bulk Data Rule Attestation that every requester signs (US 28 CFR Part 202).","quote":"I hereby represent and certify that I am not a Covered Person as that term is used in 28 CFR Part 202 and that I am not located in any of the following countries while accessing or using the Data provided in this repository: People's Republic of China (including Hong Kong and Macau), Cuba, Iran, North Korea, Russia, and Venezuela.","source":"https://www.synapse.org/Synapse:syn65660688"}},"commercial_license":{"available":"unspecified"},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-HCP-Open-Access-Terms","name":"WU-Minn HCP Consortium Open Access Data Use Terms","short_name":"HCP Open Access","url":"https://www.humanconnectome.org/storage/app/media/data_use_terms/DataUseTerms-HCP-Open-Access-26Apr2013.pdf","version":"2013-Apr-26","summary":"Accepted when registering on ConnectomeDB. Users must not try to identify participants, must follow their institution's human-subjects rules and must acknowledge the HCP. Original and derived open access data may be redistributed under the same terms. Restricted data (family structure, exact age and more) need separate terms.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The terms do not mention commercial use."},"model_training":{"value":"unspecified","note":"The terms do not mention machine learning."},"derivatives":{"value":"yes","quote":"I may redistribute original WU-Minn HCP Open Access data and any derived data as long as the data are redistributed under these same Data Use Terms."},"publication":{"value":"yes","note":"With the required acknowledgement. Restricted data elements have their own publication limits.","quote":"I will acknowledge the use of WU-Minn HCP data and data derived from WU-Minn HCP data when publicly presenting any results or algorithms that benefitted from their use."},"redistribute_original":{"value":"conditional","note":"Every recipient must register with ConnectomeDB and accept the Open Access Data Use Terms.","quote":"I may redistribute original WU-Minn HCP Open Access data and any derived data as long as the data are redistributed under these same Data Use Terms."},"redistribute_derivatives":{"value":"conditional","note":"Under the same Data Use Terms.","quote":"I may redistribute original WU-Minn HCP Open Access data and any derived data as long as the data are redistributed under these same Data Use Terms."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Papers, book chapters, books, posters, oral presentations, and all other printed and digital presentations of results derived from HCP data should contain the following wording in the acknowledgments section: \"Data were provided [in part] by the Human Connectome Project, WU-Minn Consortium (Principal Investigators: David Van Essen and Kamil Ugurbil; 1U54MH091657) funded by the 16 NIH Institutes and Centers that support the NIH Blueprint for Neuroscience Research; and by the McDonnell Center for Systems Neuroscience at Washington University.\""},"share_alike":{"value":"yes","quote":"I may redistribute original WU-Minn HCP Open Access data and any derived data as long as the data are redistributed under these same Data Use Terms."},"signed_agreement":{"value":"yes","note":"Accepted online when registering on ConnectomeDB.","quote":"I request access to data collected by the Washington University - University of Minnesota Consortium of the Human Connectome Project (WU-Minn HCP), and I agree to the following"},"ethics_approval":{"value":"conditional","note":"Only if your institution's rules require it. The HCP states that the released data are not considered de-identified.","quote":"This may mean that I need my research to be approved or declared exempt by a committee that oversees research on human subjects, e.g. my IRB or Ethics Committee."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"yes","quote":"I will not attempt to establish the identity of or attempt to contact any of the included human subjects."},"geographic_restriction":{"value":"no","note":"The terms name no countries or regions."}},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-ICPSR-38464-Restricted","name":"ICPSR Terms of Use and Restricted Data Use Agreement for ICPSR 38464","short_name":"ICPSR 38464 RDUA","url":"https://www.icpsr.umich.edu/web/ICPSR/studies/38464/terms","version":"ICPSR terms of use for study 38464 and the study's Restrictions statement, as archived on 21 February 2026 (study version V6, 2025-10-08). The Restricted Data Use Agreement itself is not public and was not read.","summary":"Restricted-use data. Access needs a Restricted Data Use Agreement, a stated reason for the request and IRB approval or an exemption notice. The ICPSR terms limit use to research or statistics, forbid re-identification and redistribution without ICPSR's written agreement, and require citing the data and reporting publications to ICPSR.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The terms limit use to research or statistics but do not mention commercial use. The Restricted Data Use Agreement may say more; it could not be read.","quote":"To use these datasets solely for research or statistical purposes and not for investigation of specific RESEARCH SUBJECTS, except when identification is authorized in writing by ICPSR"},"model_training":{"value":"unspecified","note":"The terms do not mention machine learning; the data descriptor presents the dataset as training data for AI models."},"derivatives":{"value":"unspecified"},"publication":{"value":"conditional","note":"Allowed with the recommended citation; citations of published work must be sent to ICPSR.","quote":"You agree to reference the recommended bibliographic citation in any publication that employs resources provided by ICPSR."},"redistribute_original":{"value":"no","note":"Exceptions in the general terms cover official ICPSR representatives assisting authorized users and collaboration with other authorized users. Whether they apply to restricted-use files depends on the Restricted Data Use Agreement, which could not be read.","quote":"You agree not to redistribute data or other materials without the written agreement of ICPSR, unless"},"redistribute_derivatives":{"value":"unspecified","note":"The terms do not say whether derived data such as new lesion masks count as \"other materials\".","quote":"You agree not to redistribute data or other materials without the written agreement of ICPSR, unless"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"You agree to reference the recommended bibliographic citation in any publication that employs resources provided by ICPSR."},"share_alike":{"value":"conditional","note":"Data shared in the approved ways must be passed on with these terms.","quote":"When sharing data or other materials in these approved ways, you must include all accompanying files with the data, including terms of use."},"signed_agreement":{"value":"yes","quote":"Access to these data is restricted. Users interested in obtaining these data must complete a Restricted Data Use Agreement, specify the reason for the request, and obtain IRB approval or notice of exemption for their research.","source":"https://web.archive.org/web/20260221082407/https://www.icpsr.umich.edu/web/ICPSR/studies/38464"},"ethics_approval":{"value":"yes","note":"IRB approval or a notice of exemption.","quote":"Access to these data is restricted. Users interested in obtaining these data must complete a Restricted Data Use Agreement, specify the reason for the request, and obtain IRB approval or notice of exemption for their research.","source":"https://web.archive.org/web/20260221082407/https://www.icpsr.umich.edu/web/ICPSR/studies/38464"},"publication_review":{"value":"unspecified","note":"The public terms do not ask for manuscript review; the Restricted Data Use Agreement could not be read."},"code_release":{"value":"unspecified","note":"The public terms do not ask for code release; the Restricted Data Use Agreement could not be read."},"return_results":{"value":"conditional","note":"Only citations of published work must be sent, not data or results.","quote":"Authors of publications based on ICPSR data are required to send citations of their published works to ICPSR for inclusion in a database of related publications"},"delete_after_use":{"value":"conditional","note":"The public terms require return of the data only as a sanction for violations. Whether the Restricted Data Use Agreement also requires deletion at project end is unknown.","quote":"ICPSR may revoke the existing agreement, demand the return of the data in question, and deny all future access to ICPSR data."},"no_reidentification":{"value":"yes","note":"The terms also state that any intentional identification of a research subject violates the promise of confidentiality.","quote":"To make no use of the identity of any RESEARCH SUBJECT discovered inadvertently, and to advise ICPSR of any such discovery"},"geographic_restriction":{"value":"conditional","note":"Applies to ICPSR Membership-sponsored data and to China, Hong Kong, Macau, Russia, Iran, North Korea, Venezuela and Cuba, under the US rule implementing Executive Order 14117. Use from those countries needs written approval.","quote":"you will not provide access to any data that are part of ICPSR to any person located in such countries unless ICPSR approves such access in writing."}},"commercial_license":{"available":"unspecified"},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-Kaggle-APTOS2019-Rules","name":"APTOS 2019 Blindness Detection Official Competition Rules (Kaggle)","short_name":"APTOS 2019 rules","url":"https://www.kaggle.com/competitions/aptos2019-blindness-detection/rules","version":"Rules page of Kaggle competition 14774 (page id 55032), read through Kaggle's page API on 2026-10-08","summary":"Kaggle competition rules accepted when joining the competition. The data may be used only for non-commercial purposes, including the competition and academic research and education, and must not be passed on to anyone who has not accepted the rules. Residents of several sanctioned countries are excluded. The rules say nothing about citation, derived data or publications.","purpose":"noncommercial","rules":{"commercial_use":{"value":"no","quote":"You may access and use the Competition Data for non-commercial purposes only, including for participating in the Competition and on Kaggle.com forums, and for academic research and education."},"model_training":{"value":"conditional","note":"Building models is the purpose of the competition; outside it, only non-commercial academic research and education are allowed.","quote":"You may access and use the Competition Data for non-commercial purposes only, including for participating in the Competition and on Kaggle.com forums, and for academic research and education."},"derivatives":{"value":"unspecified","note":"The rules do not mention derived data."},"publication":{"value":"unspecified","note":"Academic research is allowed, but the rules do not mention publishing results."},"redistribute_original":{"value":"no","quote":"You agree not to transmit, duplicate, publish, redistribute or otherwise provide or make available the Competition Data to any party not participating in the Competition."},"redistribute_derivatives":{"value":"unspecified","note":"The rules do not mention derived data."},"share_model_weights":{"value":"unspecified","note":"Weights are not mentioned. Code shared publicly during the competition is deemed licensed under an open source license that does not limit commercial use \"of such Competition Code or model containing or depending on such Competition Code\", and winners must open-source their winning submission; the data itself stays non-commercial.","quote":"By so sharing, you are deemed to have licensed the shared code under an Open Source Initiative-approved license (see www.opensource.org) that in no event limits commercial use of such Competition Code or model containing or depending on such Competition Code."},"attribution":{"value":"unspecified","note":"The rules do not ask for a citation or credit."},"share_alike":{"value":"no","note":"No share-alike duty for data. Code shared publicly or winning code must carry an open source license, which concerns code, not the data."},"signed_agreement":{"value":"yes","note":"The rules must be accepted on Kaggle (online) before the data can be downloaded.","quote":"You agree to use reasonable and suitable measures to prevent persons who have not formally agreed to these Rules from gaining access to the Competition Data."},"ethics_approval":{"value":"no"},"publication_review":{"value":"no"},"code_release":{"value":"conditional","note":"Only prize winners must hand over their code and license it as open source; others may keep code private.","quote":"You hereby license and will license your winning Submission and the source code used to generate the Submission under an Open Source Initiative-approved license (see www.opensource.org) that in no event limits commercial use of such code or model containing or depending on such code."},"return_results":{"value":"conditional","note":"Only prize winners must deliver their model code and documentation to the sponsor.","quote":"deliver to the Competition Sponsor the final model's software code as used to generate the winning Submission and associated documentation."},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"no","note":"The rules set no such condition. Your institution or local law may still require it for data about people."},"geographic_restriction":{"value":"yes","note":"The eligibility clause excludes residents of the listed regions and sanctioned persons from entering.","quote":"Competitions are open to residents of the United States and worldwide, except that if you are a resident of Crimea, Cuba, Iran, Syria, North Korea, Sudan, or are subject to U.S. export controls or sanctions, you may not enter the Competition."}},"verified":{"date":"2026-10-08","by":"claude-research"}},{"id":"LicenseRef-MEMENTO-Charter","name":"Access to Memento data and Publication Charter","short_name":"MEMENTO Charter","url":"https://host.credim.u-bordeaux.fr/dnn-memento/Portals/0/Chercheurs/DOC/MEMENTO_Part2_Access_Data_Publication_Charter.pdf","version":"v4.0, May 1st 2019","summary":"Every use of MEMENTO data is a proposal that the MEMENTO principal investigators and scientific coordination committee must approve. Raw MRI and PET images need specific authorisation, a contract may be required, and every abstract and manuscript must be approved by the committee before submission and list the MEMENTO Study Group.","purpose":"approved_project","rules":{"commercial_use":{"value":"unspecified","note":"The charter does not mention commercial use. It describes the cohort as open to proposals \"by any bona fide researcher\"."},"model_training":{"value":"unspecified"},"derivatives":{"value":"unspecified"},"publication":{"value":"conditional","note":"Only after the committee has approved the manuscript or abstract.","quote":"After queries have been satisfactorily dealt with by the authors and the final version of the manuscript has been reviewed and approved by the Memento Scientific coordination committee, the author can submit the manuscript."},"redistribute_original":{"value":"unspecified"},"redistribute_derivatives":{"value":"unspecified"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"A list of all those collaborating in Memento (“Memento Study Group”) should be added as an appendix to all Memento publications."},"share_alike":{"value":"no"},"signed_agreement":{"value":"conditional","note":"Every project needs written approval of a proposal; whether a contract is signed is decided case by case.","quote":"In any case, the need for contract agreement will be discussed at the Scientific coordination committee level and the contract finalised before the sub-analysis or ancillary study can start."},"ethics_approval":{"value":"conditional","note":"Only for ancillary studies that collect new data.","quote":"Contrary to sub-studies, ancillary studies necessitate an extension of data collection and specific ethics approval should thus be obtained according to regulation in force."},"publication_review":{"value":"yes","note":"The charter defines abstracts and manuscripts as proposals, so each needs committee approval before submission.","quote":"No Memento proposal should be undertaken without prior discussion within the Memento study group and authorisation of the Memento scientific coordination committee."},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Authors send a copy of each submitted abstract or manuscript to the MEMENTO secretariat for records tracking and report on progress when asked, but are not asked to return derived data."},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"no","note":"The charter does not mention re-identification. It asks for data confidentiality and security to be maintained."},"geographic_restriction":{"value":"no","note":"The charter names no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-MESA-DMDA","name":"MESA Data and Materials Distribution Agreement","short_name":"MESA DMDA","url":"https://tools.mesa-nhlbi.org/MESA_Files/publications/MESA_DMDA_Version_11.06.2023_For_Review_Only.pdf","version":"NHLBI MESA DMDA, version date 2023-11-06","summary":"Signed per research project between the recipient institution, the MESA Coordinating Center and NHLBI after a MESA proposal is approved. Use is limited to the approved project, IRB review and participant consent; data and derivatives may not be passed on, results go back to MESA, and data are destroyed when the agreement ends.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"The agreement allows for-profit recipients and mentions commercial products, but use stays limited to the approved project and to what each participant's consent allows. BioLINCC describes consent for commercial use of MESA data as tiered.","quote":"Recipient and Recipient’s PI agree not to claim, infer, or imply United States Government endorsement of the Research Project, the entity, or personnel conducting the Research Project, or any resulting commercial product(s) except as described in section 7."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. Any use must be part of the approved Research Project."},"derivatives":{"value":"conditional","note":"Derived data (\"Resultant Data\") are expected, but only within the approved Research Project.","quote":"Recipient and Recipient’s PI agree that Data, Materials, their progeny, or derivatives thereof will not be used in any experiments or procedures unless said experiments or procedures are disclosed and approved as part of the Research Project."},"publication":{"value":"conditional","note":"With the MESA acknowledgement text, and after the review described under publication_review.","quote":"Nothing in this section precludes Recipient from publishing results of the Research Project through the usual channels of scientific publication."},"redistribute_original":{"value":"no","note":"Section 4.2 only covers transfers of biological materials to contracted labs for assays.","quote":"Except as provided in section 4.2 below, Recipient may not distribute Data or Materials to any other individual or entity, regardless of the intended use of such Data or Materials."},"redistribute_derivatives":{"value":"no","note":"MESA and NHLBI may themselves distribute the Resultant Data returned to them.","quote":"Recipient and Recipient’s PI further agree not to transfer Data, Materials and their progeny, and derivatives thereof, with or without charge, to any other entity or individual, except for Data and/or Materials as provided for in section 4.2 above."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Recipient and Recipient’s PI agree to acknowledge the contribution of MESA in any and all oral and written presentations, disclosures, and publications resulting from any and all analyses of Data or Materials, in accordance with the guidelines established by the study."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"A separate DMDA is needed for each research project, and the MESA website asks for an approved MESA proposal first.","quote":"Data: Dataset access requires a signed Data and Materials Distribution Agreement (DMDA).","source":"https://mesa-nhlbi.org/researchers/registration"},"ethics_approval":{"value":"yes","quote":"Recipient and Recipient’s PI agrees to use the Data and/or Materials only in conjunction with the Research Project that has been reviewed by the Recipient's Institutional Review Board (IRB) or similar human subjects oversight body in accordance with Department of Health and Human Services regulations at 45 CFR Part 46."},"publication_review":{"value":"yes","note":"Manuscripts with MESA investigators as co-authors must also be submitted for review by MESA (section 7.1).","quote":"MESA and NHLBI request that the Recipient’s PI provide to the authorized representative for the MESA Coordinating Center (named below) a copy of any abstract ten (10) days in advance of submission for publication and any manuscript or other disclosure document thirty (30) days in advance of submission for publication, in order to permit review and comment and ensure compliance with the confidentiality requirements of this DMDA."},"code_release":{"value":"no"},"return_results":{"value":"yes","note":"A report on the Resultant Data is also due every 12 months.","quote":"Recipient and Recipient’s PI agree to provide Resultant Data to MESA in accordance with applicable NIH and NHLBI data sharing policies in place as of the effective date of this agreement."},"delete_after_use":{"value":"yes","note":"The agreement ends at project completion or after five years at the latest.","quote":"Recipient agrees to destroy all copies of all Data received from MESA and consult with MESA and the NHLBI regarding the disposition of all remaining Materials."},"no_reidentification":{"value":"yes","quote":"Recipient and Recipient’s PI agree that Materials and/or Data will not be used, either alone or in conjunction with any other information, in any effort to determine the individual identities of any of the participants from whom Data and/or Materials were obtained or derived."},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-MarkVCID-DUA","name":"MarkVCID External Data Use Agreement","short_name":"MarkVCID DUA","url":"https://markvcid.partners.org/sites/default/files/markvcid2/protocols/MarkVCID%20External%20DUA%20v4.11.24_Final_digital.pdf","version":"v.4.11.24 (11 April 2024)","summary":"Signed after the MarkVCID Steering Committee approves a project proposal. Data may only be used for that project, not for any commercial, marketing or fundraising purpose, and may not leave the recipient's institution. Manuscripts need mandatory MarkVCID acknowledgement text and a two-week check by the coordinating center, and the data are destroyed when the project ends.","purpose":"approved_project","rules":{"commercial_use":{"value":"no","note":"The consortium's sharing policy adds that scientific knowledge gained from the data may later be used to develop products that could be sold.","quote":"To not sell Data or otherwise use or disclose Data for a commercial, marketing or fundraising purpose."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. Use is limited to the approved project."},"derivatives":{"value":"unspecified","note":"The agreement does not mention derived data."},"publication":{"value":"conditional","note":"With the mandatory MarkVCID methods, acknowledgement and funding text, after a non-scientific review by the coordinating center that takes up to two weeks.","quote":"Recipient will submit all manuscripts to Holder prior to submitting to a journal."},"redistribute_original":{"value":"no","note":"Colleagues inside the institution may get the data only after agreeing to the terms in writing.","quote":"Recipient shall not transfer the Data outside of Recipient's Institution."},"redistribute_derivatives":{"value":"unspecified","note":"The agreement does not mention derived data."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","note":"The consortium's sharing policy also asks external authors to include MarkVCID personnel who meet ICMJE authorship criteria.","quote":"Depending upon the length and focus of the article, it may be appropriate to include more or less than the example below, however inclusion of some variation of the language shown below is mandatory and must be approved by Consortium."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"If the request is approved by the Steering Committee, external users will sign a MarkVCID Data Use Agreement to gain access to the data.","source":"https://markvcid.partners.org/sites/default/files/markvcid2/protocols/MarkVCID_Sharing_Policy_v4.11.24_Final.pdf"},"ethics_approval":{"value":"conditional","note":"IRB approval is needed where the recipient's institution requires it.","quote":"By accepting this Agreement, Recipient warrants that all Institution-required approvals are in place for the use of the Data. Such approvals may include, as applicable, Institutional Review Board (\"IRB\") approval and approval of the terms and conditions of this Agreement."},"publication_review":{"value":"yes","quote":"Recipient will submit all manuscripts to Holder prior to submitting to a journal. This review will not be a scientific review, but is intended to ensure that items 1-3 above are correctly implemented."},"code_release":{"value":"no"},"return_results":{"value":"no","note":"External investigators must report acceptance or rejection of manuscripts and send a copy on publication (sharing policy), but need not return data or results."},"delete_after_use":{"value":"yes","quote":"Upon expiration or early termination of this Agreement, Recipient shall destroy the Data provided, however, that Recipient may retain one (1) copy of the Data to the extent necessary to comply with the records retention requirements under any law, and for the purposes of research integrity and verification."},"no_reidentification":{"value":"yes","quote":"To not to attempt to re-identify the Data."},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"commercial_license":{"available":"unspecified","note":"No commercial license offer is published."},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-NACC-DUA","name":"NACC Data Use Agreement","short_name":"NACC DUA","url":"https://files.alz.washington.edu/documentation/nacc_data_use_agreement.pdf","version":"Data Use Agreement PDF, created 27 May 2022","summary":"Accepted with a NACC data request, for scientific investigation, teaching or planning clinical research. No distribution to anyone outside the named analysis team, no re-identification of participants or centers, a fixed acknowledgement text and a brief NACC administrative review of every manuscript before journal submission.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The agreement neither allows nor forbids commercial use. It limits the purpose to scientific investigation, teaching or planning clinical research, and its wording implies that data sets for commercial entities differ from the unrestricted set, but those terms are not published.","quote":"If I receive an unrestricted data set for non-commercial entities and non-commercial research projects, I understand that I am strictly prohibited from sharing these data with collaborators associated with commercial companies for use by that company."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning."},"derivatives":{"value":"unspecified","note":"The agreement does not mention derived data."},"publication":{"value":"conditional","note":"With the NACC acknowledgement text and after the NACC administrative review of the manuscript.","quote":"I will acknowledge the NACC grant and Center support by including the following statement in the acknowledgments section of the manuscript"},"redistribute_original":{"value":"no","note":"Collaborators and co-authors on the analysis named in the data request are not third parties.","quote":"I understand that distributing these data in any manner to a third party is strictly prohibited, and therefore I will not distribute these data beyond the uses outlined in this agreement."},"redistribute_derivatives":{"value":"unspecified","note":"The agreement does not say whether derived data count as \"these data\".","quote":"I understand that distributing these data in any manner to a third party is strictly prohibited, and therefore I will not distribute these data beyond the uses outlined in this agreement."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"I will acknowledge the NACC grant and Center support by including the following statement in the acknowledgments section of the manuscript"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"By clicking \"Submit\" below, I agree to the terms of this Data Use Agreement."},"ethics_approval":{"value":"conditional","note":"The agreement does not itself require IRB approval, only compliance with whatever your institution's IRB requires.","quote":"I will comply with any rules and regulations imposed by my institution and its institutional review board in requesting these data"},"publication_review":{"value":"yes","quote":"I will submit my manuscript to the NACC Publications System for the required brief administrative review and for tracking purposes prior to submitting my manuscript to a journal."},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Users must answer NACC requests for updates on the status of their analysis, but need not return results."},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"yes","quote":"I will receive access to de-identified data and will not attempt to establish the identity of, or attempt to contact, any of the NACC subjects."},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"commercial_license":{"available":"unspecified","note":"The agreement refers to an unrestricted data set for non-commercial entities, which implies other terms for commercial entities. No commercial terms are published."},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-NBDC-Controlled-Access","name":"NBDC Guidelines for Human Data Sharing, controlled-access data","short_name":"NBDC controlled access","url":"https://humandbs.dbcls.jp/en/guidelines/data-sharing-guidelines","version":"NBDC Guidelines for Human Data Sharing ver. 9, April 1, 2024","summary":"Controlled-access data in the Japanese NBDC Human Database go to an approved principal investigator and collaborators in the same organisation, for the purpose stated in the application, after local ethics approval and a security checklist. No redistribution, no re-identification, yearly use reports, and deletion when the use ends.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"Researchers at private-sector companies may apply and users may acquire intellectual property rights from their results, but the use must be academic research or research that improves public health, and only for the purpose stated in the approved application.","quote":"The use is limited to academic research or research that contributes to the improvement of public health."},"model_training":{"value":"unspecified","note":"The guidelines do not mention machine learning. Any training must fall within the purpose stated in the approved application."},"derivatives":{"value":"conditional","note":"Derived data may be created during the approved use. Keeping secondary data after the use ends needs an application, and all data that can restore the original must be deleted.","quote":"With regard to keeping secondary data (e.g., results of calculations or statistical analyses based on controlled-access data) or distribution of processed data with no or very low personal identifiability or primary data recoverability, see the section on the procedure for using controlled-access data"},"publication":{"value":"conditional","note":"Publications must state the dataset accession number and acknowledge the original project.","quote":"Data users can freely make the result of the study for which data from the NBDC Human Database are used public, as long as the responsibilities of data users and the limitation added for each data set are fulfilled."},"redistribute_original":{"value":"no","quote":"Redistribution of data is prohibited."},"redistribute_derivatives":{"value":"conditional","note":"Only processed data that cannot identify people or restore the original data, and in principle only after an application to the Human Data Review Board Office.","quote":"(Distribution of processed data with no or very low personal identifiability or primary data recoverability does not constitute redistribution subject to prohibition. However, in principle, an application for retention of secondary data or distribution of processed data is required.)"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"When the research results including data downloaded from the NBDC Human Databases (the Japanese Genotype-phenotype Archive, the NBDC Human data Archive, and so on) are made public in a publication or a presentation, the data user must state the accession number of the data set used."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"The application needs a DDBJ account, an organisational e-mail address, the ethics approval and a completed security checklist.","quote":"The Human Data Review Board decides whether access to the controlled-access data may be granted."},"ethics_approval":{"value":"yes","quote":"before carrying out any medical or biological research involving human subjects using data obtained from the NBDC Human Database, the data user must prepare the research protocol, go through a review by an Ethical Review Committee of his/her affiliated or an equivalent organization, and obtain approval therefrom and authorization from the head of his/her affiliated organization."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Users report on their data use every year and when it ends, but do not have to return results or derived data."},"delete_after_use":{"value":"yes","quote":"When finished with using data, the data user must delete all data obtained from the NBDC Human Database"},"no_reidentification":{"value":"yes","quote":"Identification of individuals is prohibited."},"geographic_restriction":{"value":"no","note":"The guidelines name no countries where the data may be used, and approved users of J-ADNI include organisations outside Japan. Use must follow the Japanese ethical guidelines, and entrusting work to a contractor outside Japan needs extra ethical procedures."}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-NDA-Data-Use-Terms","name":"NIMH Data Archive Data Use Terms and Conditions (Data Use Certification)","short_name":"NDA data use terms","url":"https://s3.amazonaws.com/nda.nih.gov/cms/prod/nda_data_use_terms.pdf","version":"NDA \"Data Use Terms and Conditions\" as served by the NDA content API, last updated 2024-08-05","summary":"Terms every NIMH Data Archive data access request accepts. Data are for research, scholarship or teaching; they may only be shared with collaborators who hold their own access; re-identification is forbidden; each publication needs an NDA Study linked to the data and an acknowledgement; downloaded data must be deleted when the research ends or after the one-year access period.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The terms allow \"research and research development\" and mention \"any resulting commercial product(s)\" in the endorsement clause, but never state whether commercial use is permitted.","quote":"Recipients agree to use data for scientific investigation, scholarship or teaching, or other form of research and research development."},"model_training":{"value":"unspecified","note":"The terms do not mention machine learning."},"derivatives":{"value":"conditional","note":"Derived data are expected, but derived subject-level data that could aid re-identification may not be shared.","quote":"Recipients agree to not publish or distribute any derived data that could aid in the reidentification of any of the study participants (or their relatives), including structural MRI images or genomic data that have been reprocessed using data obtained from NDA."},"publication":{"value":"conditional","note":"Each publication needs an NDA Study linking it to the data used, and an acknowledgement of the repository.","quote":"Recipients agree to create and share an NIMH Data Archive Study (https://nda.nih.gov/get/ manuscript-preparation.html) for each publication, computational pipeline, or other public disclosure of results from the analysis of data accessed in the NIMH Data Archive, whether reporting positive or negative results, thereby linking it to the underlying data."},"redistribute_original":{"value":"no","note":"Sharing is allowed only with collaborators who are themselves listed on a valid certification for the same permission group.","quote":"Recipients agree to retain control over data and to not distribute, sell, or move data, with or without charge, in any form, to any other individual, entity, or third-party system except to authorized collaborators as specified below."},"redistribute_derivatives":{"value":"conditional","note":"Only derived data that cannot aid re-identification; approval from the NDA Help Desk should be sought before sharing subject-level derived data outside an NDA Study.","quote":"Before subject-level derived data are distributed outside of an NDA Study, approval should be sought from the Help Desk."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Recipients agree to acknowledge the appropriate NIMH Data Archive data repository and the relevant Digital Object Identifier(s) (DOI), which will be minted upon NIMH Data Archive Study creation, in any and all oral and written presentations, disclosures, and publications"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"A data access request accepting these terms is required; for OAI it is approved automatically on submission.","quote":"I request access to shared data from the NIMH Data Archive for the purpose of scientific investigation, scholarship or teaching, or other forms of research and research development as described in the following NIMH Data Archive Data Use Certification (DUC)."},"ethics_approval":{"value":"conditional","note":"No IRB approval is demanded up front; the recipient must decide whether the project needs IRB consultation and follow 45 CFR 46 where it applies. Some permission groups (not OAI) require IRB documentation.","quote":"Recipients are responsible for determining whether their proposed research with data from the NIMH Data Archive necessitates consultation with their Institutional Review Board."},"publication_review":{"value":"no"},"code_release":{"value":"no","note":"Code does not have to be released, but computational pipelines and other disclosures must be registered as an NDA Study linked to the data."},"return_results":{"value":"yes","quote":"Recipients submitting renewal data access requests agree to report their results and list each related NIMH Data Archive Study in the Progress Report section below."},"delete_after_use":{"value":"yes","quote":"Recipients agree that data that has been downloaded from the NIMH Data Archive will be permanently deleted from all local or cloud-based machines when research is completed or this DUC is expired, whichever comes first."},"no_reidentification":{"value":"yes","quote":"Recipients agree that data will not be used to attempt to establish the individual identities of any of the study participants from whom data were obtained (or their relatives) and/or contact the individual study participant, except as permitted by law"},"geographic_restriction":{"value":"no"}},"verified":{"date":"2026-10-08","by":"claude-research"}},{"id":"LicenseRef-NIHCC-ChestXray","name":"NIH Clinical Center ChestX-ray dataset terms (FAQ)","short_name":"NIH CC ChestX-ray terms","url":"https://nihcc.app.box.com/v/ChestXray-NIHCC/file/249502714403","version":"FAQ_CHESTXRAY.pdf as updated 2017-12-14 (per LOG_CHESTXRAY.pdf), read 2026-10-07","summary":"Not a formal license. The NIH Clinical Center's FAQ states that use is unrestricted, but asks users to link to the original download site, acknowledge the NIH Clinical Center and cite the CVPR 2017 paper.","purpose":"any","rules":{"commercial_use":{"value":"yes","note":"The FAQ does not name commercial use, but places no restriction on use of any kind.","quote":"The usage of the data set is unrestricted."},"model_training":{"value":"yes","note":"The README presents the dataset for training deep neural networks; the FAQ places no restriction on use.","quote":"The usage of the data set is unrestricted."},"derivatives":{"value":"yes","quote":"Parties who use this public dataset are encouraged to share their “updated” image labels and/or new bounding boxes in their own studied later, maybe through manual annotation.","source":"https://nihcc.app.box.com/v/ChestXray-NIHCC/file/220660789610"},"publication":{"value":"yes","quote":"If you find the dataset useful for your research projects, please cite our CVPR 2017 paper:","source":"https://nihcc.app.box.com/v/ChestXray-NIHCC/file/220660789610"},"redistribute_original":{"value":"unspecified","note":"The FAQ speaks of usage and does not say whether the images may be re-hosted. 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Your institution or local law may still require it for data about people."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Sharing improved labels is encouraged, not required."},"delete_after_use":{"value":"no"},"no_reidentification":{"value":"unspecified"},"geographic_restriction":{"value":"no"}},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-NSHD-DSA","name":"Unit for Lifelong Health and Ageing at UCL, Framework Data Sharing Agreement (NSHD)","short_name":"NSHD DSA","url":"https://skylark.ucl.ac.uk/NSHD/wp-content/uploads/2026/01/LHA_Data-Sharing-Agreement_18Nov25.docx","version":"Framework Data Sharing Agreement, updated 18 November 2025","summary":"Signed between UCL and the researcher's institution after the NSHD Data Sharing Committee approves a project. 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They become part of the Study Data, and their intellectual property vests in UCL.","quote":"Derived Data any structured data and/or metadata derived or created by the Institution from the Study Data in the course of carrying out Research, including all associated code, syntax, methodology and documentation derived or created by the Institution from the Study Data in the course of carrying out Research."},"publication":{"value":"conditional","note":"After the advance review described under publication_review, with the NSHD acknowledgement and dataset DOIs, and as open access.","quote":"The Institution shall not submit to a journal, publish or disseminate any Output containing information that UCL considers to be confidential or potentially damaging to any of the Studies or any Study Participant."},"redistribute_original":{"value":"no","note":"Only with prior written consent from UCL.","quote":"Project Data are only used by the Researchers for purposes of the Research and are not used for any other purpose or provided to any other person other than the Researchers without the prior written consent of UCL"},"redistribute_derivatives":{"value":"no","note":"Project Data include Derived Data. 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Any use, sharing or commercial right has to be agreed with the data holder, and nothing can be assumed to be allowed. Default copyright and data protection law still apply.","purpose":"unspecified","rules":{"commercial_use":{"value":"unspecified"},"model_training":{"value":"unspecified"},"derivatives":{"value":"unspecified"},"publication":{"value":"unspecified"},"redistribute_original":{"value":"unspecified"},"redistribute_derivatives":{"value":"unspecified"},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"unspecified"},"share_alike":{"value":"unspecified"},"signed_agreement":{"value":"unspecified"},"ethics_approval":{"value":"unspecified"},"publication_review":{"value":"unspecified"},"code_release":{"value":"unspecified"},"return_results":{"value":"unspecified"},"delete_after_use":{"value":"unspecified"},"no_reidentification":{"value":"unspecified"},"geographic_restriction":{"value":"unspecified"}},"verified":{"date":"2026-10-08","by":"Spenhouet-agent"}},{"id":"LicenseRef-OASIS-DUA","name":"OASIS Data Use Agreement","short_name":"OASIS DUA","url":"https://sites.wustl.edu/oasisbrains/files/2025/07/Data-Use-Agreement_July2025.pdf","version":"OASIS Data Use Agreement Terms, July 2025","summary":"Non-commercial academic research only, after an application reviewed by OASIS staff. No sharing with anyone, collaborators included, without written permission; data must be destroyed or returned when the research ends. Publications must acknowledge OASIS, and work using AV45 or AV1451 PET must go to Avid Radiopharmaceuticals for review 30 days in advance.","purpose":"noncommercial_research","rules":{"commercial_use":{"value":"no","quote":"OASIS data are provided for non-commercial, academic research purposes only. Any commercial use, including but not limited to the sale of data or commercial consulting, is strictly prohibited without explicit, prior written authorization from OASIS."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. Any training must stay within non-commercial academic research."},"derivatives":{"value":"conditional","note":"The agreement assumes derived data exist (\"data derived from OASIS data\") but forbids derivatives that could reconstruct a face.","quote":"Additionally, User will not use or further disclose any derivative works or derivative data of the OASIS datasets, in any case in whole or in part, that could be used to reconstruct a facial image."},"publication":{"value":"conditional","note":"With the OASIS acknowledgement and citation, and after Avid review for AV45 or AV1451 PET data.","quote":"User will acknowledge the use of OASIS data and data derived from OASIS data when publicly presenting any results or algorithms that benefitted from their use."},"redistribute_original":{"value":"no","note":"Only with prior written permission from OASIS. 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Derivatives that could reconstruct a face must not be disclosed.","quote":"User shall not share, distribute, or otherwise make available the OASIS data, in whole or in part, to any third party, including collaborators, without prior written permission from OASIS."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","quote":"Papers, book chapters, books, posters, oral presentations, and all other printed and digital presentations of results derived from OASIS data should contain the following:"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","note":"OASIS-3 access is granted on NITRC-IR after OASIS staff review the application.","quote":"This file was downloaded after successfully submitting access request for the OASIS projects."},"ethics_approval":{"value":"no"},"publication_review":{"value":"conditional","note":"Only for work that uses the amyloid (AV45) or tau (AV1451) PET data.","quote":"All proposed publications or presentations using Florbetapir F18 (AV45) or Flortaucipir F18 (AV1451) PET data must be submitted to Avid Radiopharmaceuticals for review and comment thirty days prior to such presentation or publication for review of intellectual property interests."},"code_release":{"value":"no"},"return_results":{"value":"no","note":"Users must tell the Knight ADRC about their use of the data on request, but need not return results."},"delete_after_use":{"value":"yes","quote":"Upon completion of the research or upon request by OASIS, User will securely destroy or return all copies of the data."},"no_reidentification":{"value":"yes","quote":"User will not use the OASIS datasets, either alone or in concert with any other information, to make any effort to identify or contact individuals who are or may be the sources of the information in the dataset."},"geographic_restriction":{"value":"no","note":"The agreement names no countries or regions."}},"commercial_license":{"available":"conditional","note":"Commercial use needs explicit, prior written authorization from OASIS. No commercial license offer is published."},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-PhysioNet-CHDL-1.5.0","name":"PhysioNet Credentialed Health Data License 1.5.0","short_name":"PhysioNet CHDL 1.5.0","url":"https://physionet.org/about/licenses/physionet-credentialed-health-data-license-150/","version":"1.5.0","summary":"Research-only license for credentialed PhysioNet users. You need human-subjects and HIPAA training and must sign a data use agreement. You must not share the data, try to identify people, or skip releasing the code behind your publications.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The license limits use to scientific research but does not say whether that research may be commercial.","quote":"The LICENSEE will use the data for the sole purpose of lawful use in scientific research and no other."},"model_training":{"value":"unspecified","note":"The license does not mention machine learning. 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Project pages on PhysioNet ask users to cite the dataset (\"When using this resource, please cite\")."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"Only credentialed users who sign the DUA can access the files.","source":"https://physionet.org/content/mimic-cxr/2.1.0/"},"ethics_approval":{"value":"no","note":"No IRB approval is required, but the licensee must hold current training in human research subject protection and HIPAA.","quote":"The LICENSEE will be responsible for ensuring that he or she maintains up to date certification in human research subject protection and HIPAA regulations."},"publication_review":{"value":"no"},"code_release":{"value":"yes","quote":"The LICENSEE agrees to contribute code associated with publications arising from this data to a repository that is open to the research community."},"return_results":{"value":"no","note":"Results do not have to be returned. 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Unlike the credentialed license it asks for no identity check or human-subjects training. You must not share the data or try to identify people, and you must release the code behind your publications.","purpose":"research","rules":{"commercial_use":{"value":"unspecified","note":"The license limits use to scientific research but does not say whether that research may be commercial.","quote":"The LICENSEE will use the data for the sole purpose of lawful use in scientific research and no other."},"model_training":{"value":"unspecified","note":"The license does not mention machine learning."},"derivatives":{"value":"unspecified"},"publication":{"value":"conditional","note":"The license expects publications. You must not reveal anyone's identity in them and must release the code behind them.","quote":"The LICENSEE will exercise all reasonable and prudent care to avoid disclosure of the identity of any individual or institution referenced in PhysioNet restricted data in any publication or other communication."},"redistribute_original":{"value":"no","quote":"The LICENSEE will not share access to PhysioNet restricted data with anyone else."},"redistribute_derivatives":{"value":"unspecified","note":"The license does not mention derived data. Sharing access to the restricted data itself is forbidden."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"unspecified","note":"The license does not require citation. Project pages on PhysioNet ask users to cite the dataset (\"When using this resource, please cite\")."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"Only registered users who sign the specified data use agreement can access the files.","source":"https://physionet.org/content/vindr-mammo/1.0.0/"},"ethics_approval":{"value":"no"},"publication_review":{"value":"no"},"code_release":{"value":"yes","quote":"The LICENSEE agrees to contribute code associated with publications arising from this data to a repository that is open to the research community."},"return_results":{"value":"no","note":"Results do not have to be returned. 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You may not share the data or the download link, may not create derivative works, and must not try to re-identify patients. Stanford sells a separate commercial license.","purpose":"noncommercial_research","rules":{"commercial_use":{"value":"no","quote":"Any commercial use, sale, or other monetization is prohibited."},"model_training":{"value":"unspecified","note":"The agreement does not mention machine learning. Use is limited to personal, non-commercial research, and the agreement forbids derivative works."},"derivatives":{"value":"no","note":"[name] stands for the dataset name the portal inserts, e.g. CheXpert.","quote":"You must not modify, reverse engineer, decompile, or create derivative works from the [name] Dataset."},"publication":{"value":"unspecified","note":"The agreement does not address publishing results. Stanford AIMI asks users to acknowledge AIMI in publications, which assumes results are published."},"redistribute_original":{"value":"no","quote":"YOU MAY NOT DISTRIBUTE, PUBLISH, OR REPRODUCE A COPY of any portion or all of the [name] Dataset to others without specific prior written permission from the School of Medicine."},"redistribute_derivatives":{"value":"no","quote":"You may not otherwise copy, reproduce, retransmit, distribute, publish, commercially exploit or otherwise transfer any material."},"share_model_weights":{"value":"unspecified"},"attribution":{"value":"yes","note":"The requirement is on the AIMI website, not in the agreement text.","quote":"Users of AIMI datasets are expected to acknowledge Stanford AIMI in publications and presentations using the following language:","source":"https://aimi.stanford.edu/shared-datasets"},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"By registering for downloads from the [name] Dataset, you are agreeing to this Research Use Agreement, as well as to the Terms of Use of the Stanford University School of Medicine website as posted and updated periodically at http://www.stanford.edu/site/terms/."},"ethics_approval":{"value":"no"},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"no","note":"Only after a violation may Stanford ask the user to return all copies and keep none.","quote":"In the event that the School of Medicine determines that the recipient has violated this Research Use Agreement or other impermissible use has been made, the School of Medicine may direct that the undersigned data recipient immediately return all copies of the [name] Dataset and retain no copies thereof even if you did not cause the violation or impermissible use."},"no_reidentification":{"value":"yes","quote":"You will not make any attempt to re-identify any of the individual data subjects. Re-identification of individuals is strictly prohibited."},"geographic_restriction":{"value":"no"}},"commercial_license":{"available":"yes","note":"Companies can apply for a one-year license per dataset, reviewed by a Stanford committee. The page lists an annual fee of USD 70,000 per dataset for agreements contracted in FY25.","url":"https://aimi.stanford.edu/datasets-commercial-use"},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-UKB-MTA","name":"UK Biobank Material Transfer Agreement (data only)","short_name":"UK Biobank MTA","url":"https://www.ukbiobank.ac.uk/wp-content/uploads/2025/01/Material-Transfer-Agreement.pdf","version":"New Applicant MTA - Data Only (2023), ACCESS_031_F v1.4, 26 October 2023","summary":"Access for an approved health-related research project in the public interest, open to academic and commercial applicants, after paying access charges and signing the MTA. Data are analysed on the UK Biobank Research Analysis Platform and may not be passed on. Results data, including trained model parameters, must be returned to UK Biobank, manuscripts must be sent two weeks before publication, and data must be destroyed when the project ends.","purpose":"approved_project","rules":{"commercial_use":{"value":"conditional","note":"Companies can apply, but only for an approved project of health-related research in the public interest. Patents on drugs, diagnostics and other technology are allowed; patents on the genotype-phenotype data are not (clause 3.7).","quote":"Applicant or Applicant Institution: the organization (e.g., University, company or other identifiable legal entity) making the Application for access in respect of the Approved Research Project"},"model_training":{"value":"conditional","note":"UK Biobank supports training AI models within an approved project. 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UK Biobank also receives a licence to all generated data.","quote":"alternatively UK Biobank and the relevant Applicant may agree that the relevant Applicant retains the Results Data on the basis that they are made publicly available to other Researchers and/or publicly available generally"},"share_model_weights":{"value":"conditional","note":"Not allowed if the model could retrieve or generate participant-level data, or give access equivalent to it. 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Access charges apply.","quote":"UK Biobank's approval of this Application is valid for 90 days during which time the Applicant must pay the Access Charges and execute this Material Transfer Agreement (\"MTA\")."},"ethics_approval":{"value":"conditional","note":"Use within the approved project falls under UK Biobank's own Research Tissue Bank approval; separate approval only where local rules require it.","quote":"all applicable laws, regulations, guidelines and approvals, including without limitation the Human Tissue Act 2004, the Data Protection Legislation and any approvals required from a Research Ethics Committee (or the applicable equivalent in the jurisdiction where the Approved Research Project is to be conducted)"},"publication_review":{"value":"yes","note":"No approval is needed unless Annex 4 says otherwise, but UK Biobank may comment on reports likely to provoke controversy.","quote":"The Applicant shall nevertheless provide a copy of any report of its Findings and any press release to UK Biobank at least two (2) weeks before their expected date of first public presentation or publication in any format"},"code_release":{"value":"conditional","note":"Scripts belong to the Results Data that must be returned to UK Biobank, not necessarily published. Public code must not contain participant data.","quote":"Results Data: data and methodology (for example, the SAS/R/Stata scripts) which underlie the Findings, and which would enable another competent researcher to generate the Findings"},"return_results":{"value":"yes","note":"An annual project report is also required.","quote":"Within six (6) months after the publication of the Findings, the relevant Applicant shall provide to UK Biobank the Results Data in such form and format as set out in clause 5.8 above"},"delete_after_use":{"value":"yes","quote":"The Materials shall then be destroyed or otherwise rendered permanently inaccessible by the Applicant Institution in accordance with the MTA."},"no_reidentification":{"value":"yes","quote":"developing, linking or re-engineering the Materials supplied to it so as to identify (directly or indirectly) any Participant"},"geographic_restriction":{"value":"conditional","note":"Researchers anywhere may apply, but transfers outside the UK must meet data protection law, embargoed destinations are excluded (clause 2.1.4), and individual-level data normally stay on the UK Biobank Research Analysis Platform.","quote":"The Applicant shall not process any Participant Level Data (nor permit any Participant Level Data to be processed) in a territory outside of the UK (or where clause 9.4 applies, where processing occurs in a subsequent territory) unless it has taken such measures as are necessary to ensure the transfer is in compliance with Data Protection Legislation."}},"commercial_license":{"available":"unspecified","note":"Commercial organisations use the same application, fee and MTA; no separate commercial license is described."},"verified":{"date":"2026-10-07","by":"claude-research"}},{"id":"LicenseRef-fastMRI-DUA","name":"NYU Langone Health fastMRI Dataset Sharing Agreement","short_name":"fastMRI DSA","url":"https://fastmri.med.nyu.edu/","version":"Text on fastmri.med.nyu.edu as read on 2026-10-07 (undated; the page notes the agreement is subject to updates)","summary":"NYU grants a royalty-free license for internal research or education only, after an online application with an electronic signature. No selling, commercial exploitation or passing on of the data or of files derived from it, except to people under your direct supervision and in cited academic publications. Copies must be destroyed when the work is done.","purpose":"noncommercial_research","rules":{"commercial_use":{"value":"no","note":"The license covers \"internal research or educational purposes only\" and also forbids selling or monetizing the data. The website adds that MLCommons/MLPerf benchmark use counts as non-commercial use.","quote":"Not DISTRIBUTE, PUBLISH, REPRODUCE, RETRANSMIT, COMMERCIALLY EXPLOIT, COPY OR OTHERWISE TRANSFER any portion or all of the fastMRI Dataset or any subsequent variables or data files derived from the fastMRI Dataset to any person or entity other than individuals under my direct supervision and other than for uses in academic publications and presentations with citations as provided in paragraph 6 below."},"model_training":{"value":"conditional","note":"Training is the purpose of the dataset but, like any use, is limited to internal research or education. The quote is from the acknowledgement text the agreement prescribes.","quote":"The primary goal of fastMRI is to test whether machine learning can aid in the reconstruction of medical images."},"derivatives":{"value":"yes","note":"The agreement assumes derived data files exist and restricts only their transfer.","quote":"Not DISTRIBUTE, PUBLISH, REPRODUCE, RETRANSMIT, COMMERCIALLY EXPLOIT, COPY OR OTHERWISE TRANSFER any portion or all of the fastMRI Dataset or any subsequent variables or data files derived from the fastMRI Dataset to any person or entity other than individuals under my direct supervision and other than for uses in academic publications and presentations with citations as provided in paragraph 6 below."},"publication":{"value":"conditional","note":"Academic publications with the required citations. The website asks users to contact fastMRI for permission to publish images from the dataset.","quote":"I agree all publications and presentations resulting from any use of the fastMRI Dataset must cite use of the fastMRI Dataset as follows"},"redistribute_original":{"value":"no","note":"Every other user must register individually. Transfer is allowed only to individuals under your direct supervision, who must accept the same terms.","quote":"I will NOT SHARE THE DOWNLOAD LINK to the fastMRI Dataset with others."},"redistribute_derivatives":{"value":"no","note":"Except within academic publications and presentations.","quote":"Not DISTRIBUTE, PUBLISH, REPRODUCE, RETRANSMIT, COMMERCIALLY EXPLOIT, COPY OR OTHERWISE TRANSFER any portion or all of the fastMRI Dataset or any subsequent variables or data files derived from the fastMRI Dataset to any person or entity other than individuals under my direct supervision and other than for uses in academic publications and presentations with citations as provided in paragraph 6 below."},"share_model_weights":{"value":"unspecified","note":"Trained models are not mentioned. Whether weights count as \"data files derived from the fastMRI Dataset\" is not stated."},"attribution":{"value":"yes","quote":"In any published abstract, I will cite “NYU fastMRI” as the source of the data in the abstract."},"share_alike":{"value":"no"},"signed_agreement":{"value":"yes","quote":"By entering my electronic signature here, I agree to the data use agreement above."},"ethics_approval":{"value":"conditional","note":"Whatever approvals your institution or law require for the proposed use.","quote":"Use the fastMRI Dataset in compliance with all laws, governmental regulations and guidelines, including obtaining all approvals for the proposed use of the fastMRI Dataset to comply with federal, state, local and institutional policies and regulations."},"publication_review":{"value":"no"},"code_release":{"value":"no"},"return_results":{"value":"no"},"delete_after_use":{"value":"yes","quote":"When I have completed my work using the fastMRI Dataset, I will destroy all copies of the fastMRI Dataset and retain no copies thereof."},"no_reidentification":{"value":"yes","quote":"I will make no attempt to use the information in the fastMRI Dataset to identify the individual subjects or to contact such individuals or link the fastMRI Dataset with any other dataset."},"geographic_restriction":{"value":"conditional","note":"No countries or regions are named, but the data may not be moved to another location without NYU's written permission.","quote":"I will ensure that no one will be allowed to take or send fastMRI Dataset to any other location, unless prior written permission is obtained from NYU."}},"verified":{"date":"2026-10-07","by":"claude-research"}}],"vocab":{"dimensions":[{"id":"modality","label":"Modality","description":"Imaging modality, as a DICOM Modality code (MR, CT, PT, ...).","values":"vocab","combine":"all","partition":false},{"id":"contrast","label":"Contrast / sequence","description":"Image contrast. MR sequences use BIDS suffixes (T1w, T2w, FLAIR, dwi, ...). CT phases, stains and ultrasound modes have their own terms. Counts mean subjects that have at least this contrast.","values":"vocab","combine":"all","partition":false},{"id":"contrast_set","label":"Contrast combination","description":"The exact set of contrasts a subject has, joined with `+` in alphabetical order, e.g. `FLAIR+T1w+T2w`. Each subject belongs to exactly one set. This is what allows exact answers to \"how many subjects have both T1w and FLAIR\".","values":"contrast_set","combine":"all","partition":true},{"id":"tracer","label":"PET tracer","description":"Radiotracer used for PET or SPECT.","values":"vocab","combine":"all","partition":false},{"id":"anatomy","label":"Anatomy","description":"Body region or organ that was imaged. Mapped to UBERON.","values":"vocab","combine":"any","partition":false},{"id":"condition","label":"Condition","description":"Disease, finding or group (including healthy controls). Mapped to MONDO, or to HPO for findings. A subject can have several conditions.","values":"vocab","combine":"any","partition":false},{"id":"sex","label":"Sex","description":"Sex as reported by the dataset. Values follow the BIDS participants.tsv levels.","values":"vocab","combine":"any","partition":true},{"id":"age","label":"Age","description":"Age bin in completed years. `60-69` covers everyone aged 60 up to their 70th birthday, `90+` everyone aged 90 or older. Decimal bounds are allowed for children, e.g. `0-0.5`.","values":"age_range","combine":"any","partition":true},{"id":"vendor","label":"Scanner vendor","description":"Scanner manufacturer. Raw DICOM Manufacturer strings are listed as synonyms.","values":"vocab","combine":"any","partition":false},{"id":"field_strength","label":"Field strength","description":"MR field strength in tesla, e.g. `1.5`, `3`, `7`.","values":"number","combine":"any","partition":false},{"id":"country","label":"Country","description":"Country of the acquisition site, as an ISO 3166-1 alpha-2 code (US, DE, CN, ...).","values":"country","combine":"any","partition":true},{"id":"split","label":"Split","description":"Official data split.","values":"vocab","combine":"any","partition":true},{"id":"view","label":"View","description":"Projection or view for radiographs and mammograms.","values":"vocab","combine":"any","partition":false}],"measures":[{"id":"subjects","label":"Subjects","kind":"count","description":"Distinct people (or animals). Use this whenever the source reports patients, participants or cases that are people."},{"id":"studies","label":"Studies","kind":"count","description":"Imaging sessions, exams or visits. A longitudinal subject has several."},{"id":"scans","label":"Scans","kind":"count","description":"3D volumes or series, e.g. one T1w volume."},{"id":"images","label":"Images","kind":"count","description":"2D images, e.g. radiographs, fundus photos or ultrasound frames."},{"id":"slides","label":"Slides","kind":"count","description":"Whole-slide images in digital pathology."},{"id":"age_mean","label":"Mean age","kind":"summary","unit":"years"},{"id":"age_median","label":"Median age","kind":"summary","unit":"years"},{"id":"age_sd","label":"Age SD","kind":"summary","unit":"years"},{"id":"age_min","label":"Minimum age","kind":"summary","unit":"years"},{"id":"age_max","label":"Maximum age","kind":"summary","unit":"years"}],"terms":{"access":[{"id":"open","label":"Open download","description":"Download without an account"},{"id":"registration","label":"Free registration","description":"Create an account and accept terms online"},{"id":"signed_agreement","label":"Signed agreement","description":"Sign a data use agreement, often reviewed by the provider"},{"id":"credentialed","label":"Credentialed","description":"Identity check and ethics training (e.g. CITI) plus an agreement"},{"id":"application","label":"Application","description":"A research proposal is reviewed and approved"},{"id":"paid","label":"Paid","description":"Access costs money"},{"id":"on_request","label":"On request","description":"Ask the authors or the data holder. No published process or terms, and access is at their discretion"},{"id":"not_shared","label":"Not shared","description":"The data are not available outside the institution or study that holds them"}],"anatomy":[{"id":"brain","label":"Brain","mappings":{"uberon":"UBERON:0000955"}},{"id":"hippocampus","label":"Hippocampal formation","synonyms":["hippocampus"],"parent":"brain","mappings":{"uberon":"UBERON:0002421"}},{"id":"head","label":"Head","mappings":{"uberon":"UBERON:0000033"}},{"id":"neck","label":"Neck","mappings":{"uberon":"UBERON:0000974"}},{"id":"carotid_artery","label":"Carotid artery","synonyms":["common carotid artery"],"parent":"neck","mappings":{"uberon":"UBERON:0005396"}},{"id":"spinal_cord","label":"Spinal cord","mappings":{"uberon":"UBERON:0002240"}},{"id":"spine","label":"Spine","mappings":{"uberon":"UBERON:0001130"}},{"id":"eye","label":"Eye","mappings":{"uberon":"UBERON:0000970"}},{"id":"retina","label":"Retina","parent":"eye","mappings":{"uberon":"UBERON:0000966"}},{"id":"chest","label":"Chest","synonyms":["thorax"],"mappings":{"uberon":"UBERON:0001443"}},{"id":"lung","label":"Lung","parent":"chest","mappings":{"uberon":"UBERON:0002048"}},{"id":"heart","label":"Heart","parent":"chest","mappings":{"uberon":"UBERON:0000948"}},{"id":"breast","label":"Breast","mappings":{"uberon":"UBERON:0000310"}},{"id":"abdomen","label":"Abdomen","mappings":{"uberon":"UBERON:0000916"}},{"id":"liver","label":"Liver","parent":"abdomen","mappings":{"uberon":"UBERON:0002107"}},{"id":"kidney","label":"Kidney","parent":"abdomen","mappings":{"uberon":"UBERON:0002113"}},{"id":"pancreas","label":"Pancreas","parent":"abdomen","mappings":{"uberon":"UBERON:0001264"}},{"id":"spleen","label":"Spleen","parent":"abdomen","mappings":{"uberon":"UBERON:0002106"}},{"id":"stomach","label":"Stomach","parent":"abdomen","mappings":{"uberon":"UBERON:0000945"}},{"id":"colon","label":"Colon","parent":"abdomen","mappings":{"uberon":"UBERON:0001155"}},{"id":"prostate","label":"Prostate","mappings":{"uberon":"UBERON:0002367"}},{"id":"cervix","label":"Cervix","mappings":{"uberon":"UBERON:0000002"}},{"id":"ovary","label":"Ovary","mappings":{"uberon":"UBERON:0000992"}},{"id":"lymph_node","label":"Lymph node","mappings":{"uberon":"UBERON:0000029"}},{"id":"knee","label":"Knee","mappings":{"uberon":"UBERON:0001465"}},{"id":"hip","label":"Hip","mappings":{"uberon":"UBERON:0001464"}},{"id":"skeleton","label":"Skeleton","mappings":{"uberon":"UBERON:0004288"}},{"id":"skin","label":"Skin","mappings":{"uberon":"UBERON:0002097"}},{"id":"trunk","label":"Trunk","synonyms":["torso"],"mappings":{"uberon":"UBERON:0002100"}},{"id":"upper_limb","label":"Upper limb","synonyms":["upper extremity","arm","forelimb"],"mappings":{"uberon":"UBERON:0002102"}},{"id":"lower_limb","label":"Lower limb","synonyms":["lower extremity","leg","hindlimb"],"mappings":{"uberon":"UBERON:0002103"}},{"id":"whole_body","label":"Whole body","mappings":{"uberon":"UBERON:0000468"}}],"condition":[{"id":"healthy","label":"Healthy control","description":"No known condition of interest","synonyms":["control","normal"]},{"id":"alzheimers","label":"Alzheimer's disease","synonyms":["AD"],"parent":"dementia","mappings":{"mondo":"MONDO:0004975"}},{"id":"dementia","label":"Dementia","mappings":{"mondo":"MONDO:0001627"}},{"id":"frontotemporal_dementia","label":"Frontotemporal dementia","synonyms":["FTD"],"parent":"dementia","mappings":{"mondo":"MONDO:0017276"}},{"id":"vascular_dementia","label":"Vascular dementia","parent":"dementia","mappings":{"mondo":"MONDO:0004648"}},{"id":"down_syndrome","label":"Down syndrome","synonyms":["trisomy 21"],"mappings":{"mondo":"MONDO:0008608"}},{"id":"mci","label":"Mild cognitive impairment","description":"No MONDO term exists. Closest HPO term is the broader Cognitive impairment (HP:0100543).","synonyms":["MCI"]},{"id":"scd","label":"Subjective cognitive decline","synonyms":["SCD"],"mappings":{"mondo":"MONDO:0850292"}},{"id":"cognitive_impairment","label":"Cognitive impairment","mappings":{"hp":"HP:0100543"}},{"id":"parkinsons","label":"Parkinson's disease","synonyms":["PD"],"mappings":{"mondo":"MONDO:0005180"}},{"id":"multiple_sclerosis","label":"Multiple sclerosis","synonyms":["MS"],"mappings":{"mondo":"MONDO:0005301"}},{"id":"stroke","label":"Stroke","description":"Stroke of any or unspecified type. Use ischemic_stroke when the dataset is limited to ischemic stroke.","mappings":{"mondo":"MONDO:0005098"}},{"id":"ischemic_stroke","label":"Ischemic stroke","synonyms":["stroke"],"mappings":{"mondo":"MONDO:1060198"}},{"id":"transient_ischemic_attack","label":"Transient ischemic attack","synonyms":["TIA"],"mappings":{"mondo":"MONDO:0005264"}},{"id":"intracranial_hemorrhage","label":"Intracranial hemorrhage","synonyms":["ICH"],"mappings":{"hp":"HP:0002170"}},{"id":"intracerebral_hemorrhage","label":"Intracerebral hemorrhage","synonyms":["spontaneous ICH","hemorrhagic stroke"],"parent":"intracranial_hemorrhage","mappings":{"mondo":"MONDO:0013792"}},{"id":"cerebral_microbleeds","label":"Cerebral microbleeds","description":"Small hemosiderin deposits seen as hypointense foci on T2*-weighted or susceptibility-weighted MRI. No MONDO or HPO term exists.","synonyms":["CMB","microhemorrhage","MCH"]},{"id":"superficial_siderosis","label":"Superficial siderosis","synonyms":["cortical superficial siderosis","cSS"],"mappings":{"mondo":"MONDO:0016594","hp":"HP:6001255"}},{"id":"cerebral_amyloid_angiopathy","label":"Cerebral amyloid angiopathy","synonyms":["CAA"],"mappings":{"mondo":"MONDO:0005620"}},{"id":"aria","label":"Amyloid-related imaging abnormalities","description":"ARIA-E (edema, effusion) and ARIA-H (microbleeds, superficial siderosis), mostly seen under anti-amyloid antibody treatment. No MONDO or HPO term exists.","synonyms":["ARIA","ARIA-E","ARIA-H"]},{"id":"enlarged_perivascular_spaces","label":"Enlarged perivascular spaces","description":"Fluid-filled spaces around small brain vessels that are large enough to be seen on MRI. A marker of cerebral small vessel disease.","synonyms":["EPVS","PVS","dilated Virchow-Robin spaces"],"mappings":{"hp":"HP:0012520"}},{"id":"lacunes","label":"Lacunes of presumed vascular origin","description":"Small fluid-filled cavities in deep grey or white matter, the imaging trace of a past small subcortical infarct or hemorrhage. A marker of cerebral small vessel disease. HP:0032325 (Lacunar stroke) names the clinical event, not the imaging finding, so no mapping is given.","synonyms":["lacune","lacunar infarct"]},{"id":"cerebral_small_vessel_disease","label":"Cerebral small vessel disease","description":"Disease of the small arteries, arterioles, capillaries and venules of the brain, seen on MRI as white matter hyperintensities, lacunes, microbleeds and enlarged perivascular spaces. MONDO has only monogenic forms (brain small vessel disease 1 to 6, HTRA1-related), so no mapping is given.","synonyms":["cSVD","SVD","small vessel disease"]},{"id":"traumatic_brain_injury","label":"Traumatic brain injury","synonyms":["TBI"],"mappings":{"mondo":"MONDO:0858950"}},{"id":"cerebral_cavernous_malformation","label":"Cerebral cavernous malformation","synonyms":["CCM","cavernoma"],"mappings":{"mondo":"MONDO:0000820"}},{"id":"epilepsy","label":"Epilepsy","mappings":{"mondo":"MONDO:0005027"}},{"id":"schizophrenia","label":"Schizophrenia","mappings":{"mondo":"MONDO:0005090"}},{"id":"psychotic_disorder","label":"Psychotic disorder","synonyms":["psychosis"],"mappings":{"mondo":"MONDO:0005485"}},{"id":"bipolar_disorder","label":"Bipolar disorder","synonyms":["bipolar"],"mappings":{"mondo":"MONDO:0004985"}},{"id":"autism","label":"Autism spectrum disorder","synonyms":["ASD"],"mappings":{"mondo":"MONDO:0005258"}},{"id":"adhd","label":"ADHD","mappings":{"mondo":"MONDO:0007743"}},{"id":"depression","label":"Major depressive disorder","synonyms":["MDD"],"mappings":{"mondo":"MONDO:0002009"}},{"id":"brain_tumor","label":"Brain tumor","mappings":{"mondo":"MONDO:0021211"}},{"id":"glioma","label":"Glioma","parent":"brain_tumor","mappings":{"mondo":"MONDO:0021042"}},{"id":"glioblastoma","label":"Glioblastoma","synonyms":["GBM"],"parent":"glioma","mappings":{"mondo":"MONDO:0018177"}},{"id":"meningioma","label":"Meningioma","parent":"brain_tumor","mappings":{"mondo":"MONDO:0016642"}},{"id":"brain_metastasis","label":"Brain metastases","parent":"brain_tumor","mappings":{"mondo":"MONDO:1040026"}},{"id":"lung_cancer","label":"Lung cancer","mappings":{"mondo":"MONDO:0008903"}},{"id":"nsclc","label":"Non-small cell lung cancer","synonyms":["NSCLC"],"parent":"lung_cancer","mappings":{"mondo":"MONDO:0005233"}},{"id":"pulmonary_nodule","label":"Pulmonary nodule","synonyms":["lung nodule"],"mappings":{"hp":"HP:0033608"}},{"id":"breast_cancer","label":"Breast cancer","mappings":{"mondo":"MONDO:0007254"}},{"id":"prostate_cancer","label":"Prostate cancer","mappings":{"mondo":"MONDO:0008315"}},{"id":"liver_cancer","label":"Liver cancer","mappings":{"mondo":"MONDO:0002691"}},{"id":"hcc","label":"Hepatocellular carcinoma","synonyms":["HCC"],"parent":"liver_cancer","mappings":{"mondo":"MONDO:0007256"}},{"id":"kidney_cancer","label":"Kidney cancer","mappings":{"mondo":"MONDO:0002367"}},{"id":"pancreatic_cancer","label":"Pancreatic ductal adenocarcinoma","synonyms":["PDAC","pancreatic cancer"],"mappings":{"mondo":"MONDO:0005184"}},{"id":"colorectal_cancer","label":"Colorectal cancer","mappings":{"mondo":"MONDO:0005575"}},{"id":"head_neck_cancer","label":"Head and neck squamous cell carcinoma","synonyms":["HNSCC"],"mappings":{"mondo":"MONDO:0010150"}},{"id":"melanoma","label":"Melanoma","mappings":{"mondo":"MONDO:0005105"}},{"id":"skin_cancer","label":"Skin cancer","mappings":{"mondo":"MONDO:0002898"}},{"id":"melanocytic_nevus","label":"Melanocytic nevus","synonyms":["nevus","naevus","mole"],"mappings":{"mondo":"MONDO:0005073"}},{"id":"seborrheic_keratosis","label":"Seborrheic keratosis","mappings":{"mondo":"MONDO:0008420"}},{"id":"lymphoma","label":"Lymphoma","mappings":{"mondo":"MONDO:0005062"}},{"id":"pancreatic_neoplasm","label":"Pancreatic neoplasm","description":"Any pancreatic tumour or cystic neoplasm, e.g. IPMN, neuroendocrine tumour or PDAC","synonyms":["pancreatic mass","pancreatic tumour"],"mappings":{"mondo":"MONDO:0021040"}},{"id":"lymph_node_metastasis","label":"Lymph node metastasis","synonyms":["nodal metastasis"],"mappings":{"mondo":"MONDO:0005438"}},{"id":"pneumonia","label":"Pneumonia","mappings":{"mondo":"MONDO:0005249"}},{"id":"covid19","label":"COVID-19","mappings":{"mondo":"MONDO:0100096"}},{"id":"tuberculosis","label":"Tuberculosis","mappings":{"mondo":"MONDO:0018076"}},{"id":"pneumothorax","label":"Pneumothorax","mappings":{"mondo":"MONDO:0002076"}},{"id":"pleural_effusion","label":"Pleural effusion","mappings":{"hp":"HP:0002202"}},{"id":"cardiomegaly","label":"Cardiomegaly","mappings":{"hp":"HP:0001640"}},{"id":"atelectasis","label":"Atelectasis","mappings":{"hp":"HP:0100750"}},{"id":"consolidation","label":"Pulmonary consolidation","synonyms":["consolidation","parenchymal consolidation"],"mappings":{"hp":"HP:0032177"}},{"id":"pulmonary_edema","label":"Pulmonary edema","synonyms":["edema","oedema"],"mappings":{"hp":"HP:0100598"}},{"id":"emphysema","label":"Pulmonary emphysema","synonyms":["emphysema"],"mappings":{"mondo":"MONDO:0004849"}},{"id":"pulmonary_fibrosis","label":"Pulmonary fibrosis","synonyms":["fibrosis"],"mappings":{"mondo":"MONDO:0002771"}},{"id":"pulmonary_infiltrates","label":"Pulmonary infiltrates","synonyms":["infiltration","infiltrate"],"mappings":{"hp":"HP:0002113"}},{"id":"pulmonary_mass","label":"Pulmonary mass","synonyms":["lung mass","mass"],"mappings":{"hp":"HP:0033821"}},{"id":"lung_opacity","label":"Pulmonary opacity","synonyms":["lung opacity","airspace opacity"],"mappings":{"hp":"HP:0031457"}},{"id":"pleural_thickening","label":"Pleural thickening","mappings":{"hp":"HP:0031944"}},{"id":"hernia","label":"Hernia","description":"Hernia of any kind, e.g. hiatus hernia seen on a chest radiograph","mappings":{"hp":"HP:0100790"}},{"id":"no_finding","label":"No finding","description":"Image or study in which none of the dataset's target findings were reported. Not the same as a healthy control: other abnormalities may be present.","synonyms":["No Finding"]},{"id":"copd","label":"COPD","mappings":{"mondo":"MONDO:0005002"}},{"id":"pulmonary_embolism","label":"Pulmonary embolism","mappings":{"mondo":"MONDO:0005279"}},{"id":"cardiomyopathy","label":"Cardiomyopathy","mappings":{"mondo":"MONDO:0004994"}},{"id":"dilated_cardiomyopathy","label":"Dilated cardiomyopathy","synonyms":["DCM"],"parent":"cardiomyopathy","mappings":{"mondo":"MONDO:0005021"}},{"id":"hypertrophic_cardiomyopathy","label":"Hypertrophic cardiomyopathy","synonyms":["HCM"],"parent":"cardiomyopathy","mappings":{"mondo":"MONDO:0005045"}},{"id":"abnormal_right_ventricle","label":"Abnormal right ventricle","description":"Enlarged right ventricle or reduced right ventricular ejection fraction. 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