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LicenseRef-PPMI-DUA · custom agreement

PPMI Data Use Agreement

Access for scientific investigation, teaching or planning clinical research after an online application reviewed by the PPMI Data and Publications Committee. No disclosure beyond the approved use, a review of every manuscript before submission, a required data acknowledgement, and no IP claims on the data or on inventions arising from it. Model training is allowed, but not on third-party AI services that retain inputs.

Original license text Edit Purpose: Research Version read: Version 5.0, April 2026, with Appendix A on AI tools Checked 2026-10-09
GA4GH DUO: GRU

Our reading of the license, not legal advice. Before you use the data, read the original license and confirm that your use is allowed. We take no responsibility for how you use a dataset. Full disclaimer

In your favor With conditions Restricts you Not stated in the text

What you can do

  • Not stated
  • Not stated
  • Conditional
  • Yes
  • Conditional

What you can share

  • No
  • Conditional
  • Conditional

What you must do

  • Yes
  • Share alike No
  • Yes
  • Conditional
  • Yes
  • Release code No
  • Conditional
  • Delete after use No

Limits

  • Yes
  • No

Datasets under this license

  • PPMI

    Longitudinal multi-site observational study of early untreated Parkinson's disease, prodromal and genetic at-risk people and healthy controls, with DaTscan SPECT, MRI including DTI, biofluids, genetics and clinical assessments shared through LONI.