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LicenseRef-DIAN-Obs-Data-Terms · custom agreement

DIAN Observational Study Data Request Terms and Obligations

Research use within a project approved by the DIAN Obs PI and core leaders, after IRB documentation, a signed Code Access Agreement and a Data Use Agreement. No sharing with third parties without Steering Committee permission, all generated data go back to DIAN, publications name DIAN as an author and manuscripts go to DIAN 4 weeks before journal submission.

Original license text Edit Purpose: Approved project only Version read: DIAN Obs Data Request Terms & Instructions web page, with the request form and publication policy, read 2026-10-08 Checked 2026-10-08
GA4GH DUO: PSIRBRTN

Our reading of the license, not legal advice. Before you use the data, read the original license and confirm that your use is allowed. We take no responsibility for how you use a dataset. Full disclaimer

In your favor With conditions Restricts you Not stated in the text

What you can do

  • Not stated
  • Not stated
  • Conditional
  • Conditional

What you can share

  • No
  • Not stated
  • Share trained models Not stated

What you must do

  • Yes
  • Share alike No
  • Yes
  • Yes
  • Yes
  • Release code No
  • Yes
  • Conditional

Limits

  • Yes
  • No

Datasets under this license

  • DIAN Observational Study

    International longitudinal study of adult children of parents with an APP, PSEN1 or PSEN2 mutation, comparing mutation carriers with non-carrier siblings using 3T MRI (incl. T2*-GRE or SWI with microbleed reads), PiB, FDG and tau PET, fluids and cognition.