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Open Imaging Index
LicenseRef-ALLFTD-Data-Sharing-Policy · custom agreement

ALLFTD Data Sharing and Publication Policies

Data, including MR images, are released for analyses approved by the ALLFTD Executive Committee after a data request and a signed data use agreement. Research use only, no re-identification, no sharing with third parties without permission, new data go back to ALLFTD and publications credit the consortium and its grants.

Original license text Edit Purpose: Approved project only Version read: ALLFTD Data Sharing & Publication Policies web page, with the Resource Sharing page, read 2026-10-11 Checked 2026-10-11
GA4GH DUO: PSRTN

Our reading of the license, not legal advice. Before you use the data, read the original license and confirm that your use is allowed. We take no responsibility for how you use a dataset. Full disclaimer

In your favor With conditions Restricts you Not stated in the text

What you can do

  • Not stated
  • Not stated
  • Not stated
  • Conditional
  • Conditional

What you can share

  • No
  • Not stated
  • Not stated

What you must do

  • Yes
  • Share alike No
  • Yes
  • Conditional
  • Conditional
  • Release code No
  • Yes
  • Conditional

Limits

  • Yes
  • No

Datasets under this license

  • ALLFTD

    Longitudinal brain MRI, clinical and neuropsychological data from people with sporadic or familial frontotemporal lobar degeneration syndromes and their relatives, collected to model disease progression and prepare clinical trials. Includes the predecessor studies ARTFL and LEFFTDS.